Reply to Jan re "paralyzing"
"I still have frequent "paralyzing" whenever I am trying to wake up. That is I can hear, but not move. I actually feel fine, unles I have to scratch my nose! LOL Getting the electrolytes balanced is the key."
Jan, I also have MS and decades of experience with the same "paralyzing" upon waking. My super-specialist neuro dx'd me with "Familial Periodic Paralysis." Most neuros will never see it in their entire careers. It is not part of MS. Mine, untreated, would last about 20 minutes each morning. There is an unbelievably simple remedy. At bedtime, take a 250mg tablet of acetazolamide (formerly known as Diamox. I have had only a few episodes of waking paralysis since starting this routine. And it is a cheap generic drug. Needs a prescription though.
You are correct about electrolytes. Low potassium is involved in this, but you would be extremely lucky to get your blood drawn during the paralysis, which is the only time the K is low.
"I still have frequent "paralyzing" whenever I am trying to wake up. That is I can hear, but not move. I actually feel fine, unles I have to scratch my nose! LOL Getting the electrolytes balanced is the key."
Jan, I also have MS and decades of experience with the same "paralyzing" upon waking. My super-specialist neuro dx'd me with "Familial Periodic Paralysis." Most neuros will never see it in their entire careers. It is not part of MS. Mine, untreated, would last about 20 minutes each morning. There is an unbelievably simple remedy. At bedtime, take a 250mg tablet of acetazolamide (formerly known as Diamox. I have had only a few episodes of waking paralysis since starting this routine. And it is a cheap generic drug. Needs a prescription though.
You are correct about electrolytes. Low potassium is involved in this, but you would be extremely lucky to get your blood drawn during the paralysis, which is the only time the K is low.
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