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    #31
    I haven't read all the post yet, but I am so surprised by this post. I have had very similar issues for a while now. I thought it could be from my ms meds but not my ms. My cardiologist today mentioned the drug you are on for low bp as well. He's running other test first. My bp was 87/35 today. Do you get rapid heart rate?

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      #32
      Originally posted by Torn View Post
      I haven't read all the post yet, but I am so surprised by this post. I have had very similar issues for a while now. I thought it could be from my ms meds but not my ms. My cardiologist today mentioned the drug you are on for low bp as well. He's running other test first. My bp was 87/35 today. Do you get rapid heart rate?
      Hi Torn,
      Not sure who you were addressing, and not sure which med you were referring to, but I get rapid heart rates and a type of arrythmia called SVT. I take Clonidine for the BP spikes and a beta blocker to try to keep my heart rate normalized. According to the cardiologist that specialized in reading EKG's, he feels the heart rate and arrythmia problem are all MS.

      I had a bunch of tests. If you have low or high bp, they can do a 24 hour bp monitor, to see exactly what your BP is doing. It takes your BP every 15 minutes during the day. Easy test, you just wear a cuff attached to a machine...that way they have a reading of what exactly your BP is doing. They caught my arrythmia/tachycardia on an EKG at the ER, but they also have monitors you wear for 24 hours to check on that.

      Good news is you're dealing with a cardiologist who's checking everything out. I also was referred to a BP specialist. In the end they both concluded MS related. I guess once they've run all the other tests and everything else is fine...at that point they blame MS.

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        #33
        I noticed many of us are on high sodium diets. I am also on a drug called Florine's which retains sodium. I just wanted to let yu know there are other foods high in sodium much healthier than chips. Every morning I have a glass of V 8. Juice. I never had a weight problem but was told avoid fried foods such as chips salted pretzels. Celery. Snack. Canned soups and the list Goes on. Add salt to your food. I have been doing this since 1998.
        Good luck
        Laurie

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          #34
          Thanks Laurie! I hadn't thought of V8 juice! I am adding that to my list!

          Lisa
          Disabled RN with MS for 14 years
          SPMS EDSS 7.5 Wheelchair (but a racing one)
          Tysabri

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            #35
            I am on tecafidera but had these issues before starting it but they seemed to worsen after starting it. I have to wear a monitor for thirty days and increase sodium to try and keep bp up. I am also doing a stress test (which will be difficult). My EKG showed a tachacardia as well as an arythmia st and t? He said after checking for structural abnormalities and ruling them out he will look at other possible reasons such as low bp, loss of weight, and medication ect. I'm assuming ms could also be a reason. Interesting to hear.

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              #36
              Let us know how it goes Torn. That combination is very interesting. I am not on Tec. Are they taking your BP on intervals as well as just the HR monitor?

              Good luck.

              Lisa
              Disabled RN with MS for 14 years
              SPMS EDSS 7.5 Wheelchair (but a racing one)
              Tysabri

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                #37
                Originally posted by laurasari View Post
                I noticed many of us are on high sodium diets. I am also on a drug called Florine's which retains sodium. I just wanted to let yu know there are other foods high in sodium much healthier than chips. Every morning I have a glass of V 8. Juice. I never had a weight problem but was told avoid fried foods such as chips salted pretzels. Celery. Snack. Canned soups and the list Goes on. Add salt to your food. I have been doing this since 1998.
                Good luck
                Laurie
                My guilt free sodium food is pickles ....almost no calories, but lots of salt. Also if you're an anchovie fan, lots of salt, but lots of omega 3's too. I've found people either like or hate anchovies...no one in the middle when it comes to an opinion about them

                Here's an article about all the health benefits of anchovies...not to mention the high sodium part:

                http://healthyeating.sfgate.com/heal...vies-2748.html

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                  #38
                  Thanks for the anchovy link...I have always loved eating them, now more info to defend against 'chovi haters
                  RRMS 2011, Copaxone 2011-2013, Tecfidera 2013-current

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                    #39
                    I forgot about pickles. I eat them often. Enjoy

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                      #40
                      Hey guys. I have this combo too, although I hadn't really linked the two together. I do find it confusing sometimes to tell what symptom I am getting from what. I am actually going to be going to a POTS treatment center in Dallas, Texas in December. I'm hoping it can help...with any of my daily symptoms really!
                      ~Jessica
                      RRMS, TYSABRI, DX-11/4/12

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                        #41
                        Jessica: Good luck with your appointment. I hope all goes well. Please let us know how it goes, OK?

                        It can be hard to tell what causes what, but it is usually caused by a lesion in the brainstem that makes your blood pressure, heart rate, and sometimes breathing to go a little haywire.

                        The testing is no fun, but will for sure yield an answer.

                        Take care,
                        Lisa
                        Moderation Team
                        Disabled RN with MS for 14 years
                        SPMS EDSS 7.5 Wheelchair (but a racing one)
                        Tysabri

                        Comment


                          #42
                          Originally posted by 22cyclist View Post
                          Jessica: Good luck with your appointment. I hope all goes well. Please let us know how it goes, OK?

                          It can be hard to tell what causes what, but it is usually caused by a lesion in the brainstem that makes your blood pressure, heart rate, and sometimes breathing to go a little haywire.

                          The testing is no fun, but will for sure yield an answer.

                          Take care,
                          Lisa
                          Moderation Team

                          Thanks for your reply! I will keep everyone updated on how it goes. In my comment, I was referring to how I never knew which was causing my symptoms, my MS or my POTS. I passed out a couple times, so I called my Neurologist and he was like "um, that's not me", lol, and I was so confused.... I know now it was my POTS that caused this. I don't suppose it really matters in the long run, but my MS was so active for so long, I almost forgot I even had POTS. Now that the MS seems to be calming down (knock, knock) I started looking into the POTS more, and that's when I found the clinic and signed up for the program. My best friend actually lives in Dallas, so I had her set up an appointment and go check it out for me before I even considered going. Glad I did, because she came back raving about the place, so I'm excited!
                          ~Jessica
                          RRMS, TYSABRI, DX-11/4/12

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                            #43
                            Will do!!!
                            ~Jessica
                            RRMS, TYSABRI, DX-11/4/12

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                              #44
                              I've told my Neuro that I believe I have Autonomic Dysfunction. Told him of my symptoms (Heart dysrhythemia, stuffy nose, lightheaded).

                              Neuro said "there's nothing we can do about that, don't worry. If you think you need to, go to ER"

                              Sometimes, my Neuro scares me (in so many different ways!)

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                                #45
                                Wow seal! That would make me want a new Neuro! Do you have a Neuro or a MS Specialist?
                                ~Jessica
                                RRMS, TYSABRI, DX-11/4/12

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