New Here, and Looking for Info!

[jennbrooke]

Hi! My name is Brooke and I'm will be going through the process of being evaluated for MS in the coming month.

I am a wife and mother of 2 (ages 10 and almost 7), and have also been diagnosed with Ehlers-Danlos Syndrome, which is a connective disorder that is thought to come with an increased risk of MS.

While I'm not looking forward to the testing, I'm happy to get to know you all while I go through the investigative, and possibly, diagnosing process.

[JerryD]

Hi Jenn,
glads you found us but sorry that you needed to find us. Make sure you get your doctor to test your vitamin D, B-12 and magnesium levels. Don't accept an answer of ' they look OK' ! Get the numbers from the tests. Good luck

[jennbrooke]

Thanks, Jerry! I'll add that to the list of things to check on! I take daily multivitamins, so I wouldn't think that would be the case, but it doesn't hurt to check in case there's a.

The good thing is the place I'm going uses an online medical info system where I am alerted and can log in and see all test results as soon as they come in. So I'll have exact numbers for any test result.

[MSLorrie]

Hi, Jenn, welcome!

I have Ehlers-Danlos too! When I was a kid I used to freak the other kids out by showing how far I could stick out my tongue and also by making my fingers do weird things.

I'm new here too and just diagnosed and trying to learn about everything.

[MSer102]

Welcome! For good info you can go to the website of the National Multiple Sclerosis Society www.nmss.org. There's lots of info about MS and how its diagnosed and how to live with it.

[jennbrooke]

Thanks!

Thanks, MSLorrie and MSer102!

MSLorrie - So nice to run into a fellow EDSer! I'm sorry you're dealing with a new diagnosis, but hopefully we two zebras can help one another.

MSer102 - I'll definitely check that link out. Thanks!

[hunterd]

HI BROOKE, WELCOME!!!!!!great to have you here! I'm glad you found us. Any time you have a question just ask, the members here are very helpful. Again welcome! Good luck

[Cat Mom]

Hi and welcome!
Jen

[MSLorrie]

I'm sure we can help one another, I already have gotten

So much reassurance here! I hope someday I can give something back but I'm so new at this and have a lot of learning to do before I can be helpful to anyone.

Right now I'm just a needy newbie, LOL!

I'm determined to have a good life in spite of this disease!

I was put in casts from the hips down as a baby. Doc said I'd never walk. I later became a long distance runner and an Airborne soldier. I am a fighter!

I bet you are, too!

[jennbrooke]

That I am. My dad always used to caution me to fight for the right things, instead of just fighting. LOL

I had a similar experience as a baby - no cast - but I'd had failure to thrive and they told my mom I wouldn't live to see 1 and if I did, I wouldn't walk, because I was too weak. Of course, that makes so much more sense now that I know I had EDS all that time. Of course I was a floppy baby! And like you, I proved them all wrong. I am also somewhat of a runner, and hope to continue, although I stick to the lower distances like 5K.

[MSLorrie]

Wow! I envision the two of us with matching tshirts

That say, "the fighting zebras" lol!

We've had struggles early in life and we went on to enjoy life, and I am sure we will enjoy life in spite of whatever struggles may lie ahead!

[aitch10]

Hi and welcome, though sorry you have to be here.

I'm a mom too, to two boys aged 3.5 and 9 months.

Good luck with your testing! Now I'm off to google the disorder you've already been DX'd with.

[aitch10]

What the what? I'm hypermobile.

[CaroleL]

Hello and Welcome Brooke!