Hello. I am Amy and I am from Arkansas. 3 yrs ago in April I started having weird eye issues. It's like my vision out of the left field of vision would slam back and forth. This would happen at least 3 times a day lasting 30 seconds or so. After about 2 mths it disappeared but a few months later it came back but this time my vision was doubling. I went to the eye doctor who said if it wasn't happening right then there was no way for her to tell what it was. So I blew it off and dealt with it on my own.
This past May 2012 I had extreme neck pain and abnormal skin sensations all over my body. I also developed a Parkinson like tremor which lasted for 2 months. Was given Neurontin which helped a lot.
That's when I saw a neurologist. After a MRI they found 10 lesions. I had all the necessary blood work to rule everything out and it all came back normal.
Had a painful LP which came back normal. My neuro feels that this is MS. In April I go back for a follow up MRI to check for more lesions. I am almost sure they will find more. I have had 3 what I call episodes since the last MRI. I also developed spasticity in my hips and now take Baclofen.
I lost my job back in July 2012 and have been unable to find another one. So no insurance, but I have a great Neuro who lets me make payments and has eaten the cost of the MRIs. I want answers like we all do.
Since there is nothing I can do about it right now I try not to worry. I have good days but have bad days more often.
So that's a little bit of my story. Thanks in advance for all of your input.
** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print. **
This past May 2012 I had extreme neck pain and abnormal skin sensations all over my body. I also developed a Parkinson like tremor which lasted for 2 months. Was given Neurontin which helped a lot.
That's when I saw a neurologist. After a MRI they found 10 lesions. I had all the necessary blood work to rule everything out and it all came back normal.
Had a painful LP which came back normal. My neuro feels that this is MS. In April I go back for a follow up MRI to check for more lesions. I am almost sure they will find more. I have had 3 what I call episodes since the last MRI. I also developed spasticity in my hips and now take Baclofen.
I lost my job back in July 2012 and have been unable to find another one. So no insurance, but I have a great Neuro who lets me make payments and has eaten the cost of the MRIs. I want answers like we all do.
Since there is nothing I can do about it right now I try not to worry. I have good days but have bad days more often.
So that's a little bit of my story. Thanks in advance for all of your input.
** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print. **
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