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Muscle Twitching and Fasciculations

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    #16
    MS & Twitching studies

    If anyone is interested in what I found, I Googled "MS Studies on Peripheral Nervous System", and although there are a spattering of results on the first two pages of results stating that PNS is not involved, the majority of results showed that there is definitely an interest in finding out if PNS is involved, and the following spattering of "top" results, suggest that the PNS is involved in MS.

    Remember, when you think about the progression of knowledge about MS, it is only recently that they even acknowledge that lesions can affect the grey matter of the brain, whereas they used to just say the white matter was affected.

    I think it is important for patients and doctors alike to always keep an open mind when dealing with an illness that the medical profession admittedly does not know everything about. Anytime new finding surface, that just brings us closer to finding a possible cause, and therefore to finding a cure. Open minds are a good thing. Any doctor or specialist making a general or blanket statement about a disease such as MS should always say something along the lines of, "XXX has not been shown to be a part of MS, but we are learning things all the time about this disease." Or, "XXX is not commonly reported/found in MS, but the disease has so many varied sx that we cannot rule it out."

    Just saying…

    (Note to moderator: I believe all of these URLs are in compliance with MSWorld guidelines, as they are from reputable sources and discuss MS. However, if you disagree, people can Google my search terms on their own if they are interested."

    Thanks, Helen

    http://www.ncbi.nlm.nih.gov/pubmed/15383952

    Glossary of Research Terms from the MS Society of Canada: Peripheral nervous system (PNS) - Nervous system in the body aside from the brain and spinal cord. The PNS can be affected by MS.

    http://www.ajnr.org/content/24/7/1390.full

    http://www.ncbi.nlm.nih.gov/pubmed/20629712

    http://jnnp.bmj.com/content/43/11/999.full.pdf (Read the conclusion)

    http://www.researchgate.net/publicat...iple_sclerosis

    http://www.ncbi.nlm.nih.gov/pubmed/19155142
    20+ years of sx - no dx yet - getting close!

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      #17
      Originally posted by HellsBells1 View Post

      Does anyone experience constant fasciculations that you can see under your skin (like in your arms or legs) and even strong muscle twitches that you can really feel quite strongly?

      I have constant twitching in my calves, and regular twitching in many other parts of my body, including arms, stomach (including inside - feels like a baby kicking), breasts, butt, eyelid, lips, toes/feet (bottom of feet), fingers/hands, etc. Just about anywhere I have a muscle, I experience twitching. Have even had twitching inside my ear making a sound like a very distant helicopter.


      What's your experience, if any?
      Yes that's me ! I have them all the time mainly in my calves but I do get them everywhere including my eyes.
      Thank you for the links when I have the time I am going to look through that.
      Prior to my MS DX I have no fasciculations, about 6 months after my DX they stared and that was before I started taking Copaxone so I know that's not that cause.
      Some days are worse than others and the less sleep the more frequent they are.
      Ankylosing Spondylitis DX- Sept 2008, MS DX- November 2011,RRMS- 1-11-12, Copaxone -3-2-12

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        #18
        Hi!

        I've been getting twitching in my eyes, side of face and neck off and on for years. No-one has connected it to the MS as of yet, but then again I didn't really think to bring it up any of the few times I've been seen specifically for MS. My GP keeps telling me it's allergies.

        Oh, and when the eye tic starts (either eye, but generally left), that side of the face swells and droops a bit so I kind of look like I've had a stroke.

        I dunno. It's all crazy, hey?!

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          #19
          I had a major twitch in my left shoulder for a long time. One dr told me to lay off the caffeine...but I got my MS dx and was told I was defficient in vitamin D & vitamin B-12. I'm taking 50,000mg/week and getting B-12 shots every month since November 2012. While reading this, I just realized my twitches are gone...the B-12 maybe?

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            #20
            b-12 is normal for me and has been all along , so it wouldn't be in my case.
            Ankylosing Spondylitis DX- Sept 2008, MS DX- November 2011,RRMS- 1-11-12, Copaxone -3-2-12

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              #21
              Sorry to resurrect this old thread but I, too, am having constant calf muscle twitching. It's so frustrating that all the official MS literature says this is not a symptom yet there is so much anecdotal evidence.

              My story matches Flug's almost identically, i.e, didn't have these before Dx in May and now they're present in my calves all the time. I do have lesions in my spine with one at the T12/L1. That dermatome controls leg muscle movement so I can't help but attribute it to that.

              I've also seen these recent publications acknowledging the PNS is involved.

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                #22
                Went and saw my nero of Wednesday and he basically given up on trying to figure it out?
                Ankylosing Spondylitis DX- Sept 2008, MS DX- November 2011,RRMS- 1-11-12, Copaxone -3-2-12

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                  #23
                  I had onset of twitching in my legs (first one, then started mildly in other, now both) during my last exacerbation. It's still with me, even though almost everything else has resolved.

                  From timing, it certainly seems part of whatever I have ... which may or may not be ms since I'm in limbo and waiting for THE appointment ... maybe ... at the end of the month.

                  Comment


                    #24
                    twitching

                    One of the most common causes of fasciculations and twitching is electrolyte abnormalities. Make sure that you are staying well hydrated and maybe taking some multivitamins and a good diet. Just something to consider

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                      #25
                      That's true, but I just had all of my electrolytes and minerals (magnesium, calcium, potassium, sodium) etc. all checked out at the Mayo Clinic, and they are all normal. I would say that imbalances are the most common reason for "occasional" spasms, cramps, twitching, etc. but I don't think for chronic twitching. Although BFS is benign, that just means it is not damaging your muscle tissue, but is probably still resulting from some type of CNS dysfunction. Just my opinion
                      20+ years of sx - no dx yet - getting close!

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                        #26
                        Flug,

                        Did your Dr do an EMG or any peripheral nerve testing? Did he chalk it up to MS or just give up?

                        Eric

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                          #27
                          twitching

                          I've had the twitching for years before gettting dx. All on the left side of my body. Mostly happens at night when everything is relaxed (well untill all the twitching starts).
                          Extremely uncomfortable and annoying for me and my hubby who continuously gets woken up with my body jerking around.

                          So what can we do about it?
                          What does cause it?

                          I was on requib for awhile but trying to get off some of the prescription meds. Maybe try it again and see what happens.
                          DIAGNOSED=2012
                          ISSUES LONG BEFORE
                          REBIF 1 YEAR

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                            #28
                            hi merc25..
                            I've been up all night with it...

                            I have RLS (restless leg syndrome), low potassium and spasticity, plus some big random spasms.

                            My doc put me on new meds for it all, so far-no winner, I guess! Sure hope you get a medicine that works for you. fed

                            Comment


                              #29
                              Originally posted by ENL2772 View Post
                              Flug,

                              Did your Dr do an EMG or any peripheral nerve testing? Did he chalk it up to MS or just give up?

                              Eric
                              See my other post (very long) "A little venting... and Moving On!" if you are interested in classic MS symptoms and a Dx of "Stress" basically from the Mayo Clinic.

                              All EMG and Evoked Potentials done. All normal. I had to go to Mayo Clinic (and I'm Canadian) because my doctor here would not do any testing besides an MRI which showed non-specific lesions in my brain.

                              Starting the practice of meditation. Ooohm!
                              20+ years of sx - no dx yet - getting close!

                              Comment


                                #30
                                Originally posted by ENL2772 View Post
                                Flug,

                                Did your Dr do an EMG or any peripheral nerve testing? Did he chalk it up to MS or just give up?

                                Eric
                                Hi, no I never got an EMG or peripheral nerve testing... He told me it's NOT an MS symptom.. he has no clue of what it is. I have to find a new nero anyways because he is now out of my network. So I will see what the new doc says....
                                Ankylosing Spondylitis DX- Sept 2008, MS DX- November 2011,RRMS- 1-11-12, Copaxone -3-2-12

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