Hi Everyone,
I am new to here and still not really believing I am here!! I have so many questions that I want answers to but it seems like MS doesn't have any answers?
You know simple things like I have asked my GP and Neurologist "How long will a flare up last?" Answer: We don't know this, it is very individual... "Will my symptoms get worse?" Answer: We don't know this, MS is very complex... "Will the tiredness stay forever"? Answer: It is one of the most common symptoms of MS... Is that a yes or a no?? LOL
So suffice to say I am frustrated, very. The not knowing is a killer, you know like if you broke an ankle they might tell you cast for 6 weeks, physio for 8 weeks then all is well. Then you know where you are going and can deal with. With MS tough, for me anyway, the numb feet, numb tingling rib cage and tiredness like I have never felt before seem to be with me forever although in reality its only been 6 months.
Oh and the walking into door frames?? Is that normal? I go to walk say out of my bedroom door and next thing I am banging into the side of it? It is a normal size door frame and I am a small size LOL Weird! I was diagnosed three weeks ago and am now, well since I found this site coming out of denial and attempting to understand it. But what I really wanted to ask at this time was when does the thinking stop?
Is there a morning you wake up and MS and where it might take you is not the first thing on your mind, or a night when you go to sleep and its not the last thing you think of? I am going on bit sorry, I just have sooo much to say and ask
My symptoms are not too bad I know, they are just sensory really and the fatigue, that is hard to get used to. I used to love running but a couple of times late last year I tripped on nothing ( I know that sounds mad) and well now with the numbness in my toes I am afraid to start again in case I make my symptoms worse?
The other thing I find frustrating that MS has brought into my life is that suddenly everyone I know, family and friends (although I haven't told too many people thankfully!), is a Doctor and Nutritionalist!?
Of course it is all meant with the best of intentions and with love but I have only just found out!? I haven't even got my head around it so no I am not going on a Pineapple diet LOL "Did you try this, have you seen this, I heard this is very good for MS, I read you should etc etc..." Hello people I can't take all this in and I can't try everything that is thrown at me. Least not right now...
I am a single Mum of two amazing children (early teens) and I work full-time. We follow a very healthy diet, its funny but I feel some people are thinking "what did you do to cause this" but maybe that is me thinking out loud in my own head
I was also wondering if it is normal (I mentioned this on my last post) that I didn't cry when I was told, wasn't emotional at all, in fact was all positive and fabulous.... Until this week when I seem to be hitting a wall.
I am hoping this is just me accepting it bit by bit and now three weeks later going through the emotions? Its like I have been on Auto Pilot and now the engine has turned off and I am like "Oh I have MS"
One thing I really don't want, couldn't bear, is to be defined by it. I am hoping being on here and reading how other people, with worse symptoms that me even, are living their lives well... I know I have gone on and on...and then some! I am sorry about that (there is no blushing face icon)
You know its like even if no one reads this I have written it, vented, ranted and let it out. That is helping me anyway
I am not on medication my Neurologist said as my symptoms are sensory (apparently that is not too bad, although it is bothersome!). I have to have two more contrasting MRI's (brain and spine) one in a few weeks and another one four months later.
If the MRI's show up any further activity, even if no new symptoms I will have to go on medication which scares the crap out of me. But I guess cross that bridge when I come to it. Ok if anyone should take the time to read thank you I have lots of questions but I will break them down into sorter posts This was just a little bit about me
I am new to here and still not really believing I am here!! I have so many questions that I want answers to but it seems like MS doesn't have any answers?
You know simple things like I have asked my GP and Neurologist "How long will a flare up last?" Answer: We don't know this, it is very individual... "Will my symptoms get worse?" Answer: We don't know this, MS is very complex... "Will the tiredness stay forever"? Answer: It is one of the most common symptoms of MS... Is that a yes or a no?? LOL
So suffice to say I am frustrated, very. The not knowing is a killer, you know like if you broke an ankle they might tell you cast for 6 weeks, physio for 8 weeks then all is well. Then you know where you are going and can deal with. With MS tough, for me anyway, the numb feet, numb tingling rib cage and tiredness like I have never felt before seem to be with me forever although in reality its only been 6 months.
Oh and the walking into door frames?? Is that normal? I go to walk say out of my bedroom door and next thing I am banging into the side of it? It is a normal size door frame and I am a small size LOL Weird! I was diagnosed three weeks ago and am now, well since I found this site coming out of denial and attempting to understand it. But what I really wanted to ask at this time was when does the thinking stop?
Is there a morning you wake up and MS and where it might take you is not the first thing on your mind, or a night when you go to sleep and its not the last thing you think of? I am going on bit sorry, I just have sooo much to say and ask
My symptoms are not too bad I know, they are just sensory really and the fatigue, that is hard to get used to. I used to love running but a couple of times late last year I tripped on nothing ( I know that sounds mad) and well now with the numbness in my toes I am afraid to start again in case I make my symptoms worse?
The other thing I find frustrating that MS has brought into my life is that suddenly everyone I know, family and friends (although I haven't told too many people thankfully!), is a Doctor and Nutritionalist!?
Of course it is all meant with the best of intentions and with love but I have only just found out!? I haven't even got my head around it so no I am not going on a Pineapple diet LOL "Did you try this, have you seen this, I heard this is very good for MS, I read you should etc etc..." Hello people I can't take all this in and I can't try everything that is thrown at me. Least not right now...
I am a single Mum of two amazing children (early teens) and I work full-time. We follow a very healthy diet, its funny but I feel some people are thinking "what did you do to cause this" but maybe that is me thinking out loud in my own head
I was also wondering if it is normal (I mentioned this on my last post) that I didn't cry when I was told, wasn't emotional at all, in fact was all positive and fabulous.... Until this week when I seem to be hitting a wall.
I am hoping this is just me accepting it bit by bit and now three weeks later going through the emotions? Its like I have been on Auto Pilot and now the engine has turned off and I am like "Oh I have MS"
One thing I really don't want, couldn't bear, is to be defined by it. I am hoping being on here and reading how other people, with worse symptoms that me even, are living their lives well... I know I have gone on and on...and then some! I am sorry about that (there is no blushing face icon)
You know its like even if no one reads this I have written it, vented, ranted and let it out. That is helping me anyway
I am not on medication my Neurologist said as my symptoms are sensory (apparently that is not too bad, although it is bothersome!). I have to have two more contrasting MRI's (brain and spine) one in a few weeks and another one four months later.
If the MRI's show up any further activity, even if no new symptoms I will have to go on medication which scares the crap out of me. But I guess cross that bridge when I come to it. Ok if anyone should take the time to read thank you I have lots of questions but I will break them down into sorter posts This was just a little bit about me
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