This is not a pleasant matter, but one of my biggest fears of progressing with my M.S. is...smelling of urine. I visited a friend of mine who has had M.S. for years and is now bed-ridden. Despite the fact that she has 2 adult caregivers who live with her AND a visiting nurse, she and her home smelled of urine. Nobody living there noticed it. I am guessing they are used to it.
My friend wears a catheter, but I swear to you she is so clean in appearance. It's not like she isn't well-cared for, she is! It just doesn't seem like you can absolutely control that odor no matter what.
Selfishly, I left there feeling pity for myself, wondering if I might one day be in the same boat. Seeing a dignified, proud, and yes, clean woman in this condition really bummed me out. At the same time, I couldn't wait to end my visit and breath some fresh air!
I think I am probably the only one on this board who thinks about this stuff, but I remember my mother smelling this same way and it brings back horrible memories and new fears. Thanks for listening. I hope I don't sound selfish.
My friend wears a catheter, but I swear to you she is so clean in appearance. It's not like she isn't well-cared for, she is! It just doesn't seem like you can absolutely control that odor no matter what.
Selfishly, I left there feeling pity for myself, wondering if I might one day be in the same boat. Seeing a dignified, proud, and yes, clean woman in this condition really bummed me out. At the same time, I couldn't wait to end my visit and breath some fresh air!
I think I am probably the only one on this board who thinks about this stuff, but I remember my mother smelling this same way and it brings back horrible memories and new fears. Thanks for listening. I hope I don't sound selfish.
Comment