Ok so I was diagnosed last year and I am watching Sharon Osborn on the talk and thinking man he isn't dying. I know this disease is a bad thing but I feel like the way the tv and internet is talking about Jack it is like he has a few months to live. Am I the only one thinking they are making a way big deal out of something we live with everyday?
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Originally posted by lisa1014 View PostOk so I was diagnosed last year and I am watching Sharon Osborn on the talk and thinking man he isn't dying. I know this disease is a bad thing but I feel like the way the tv and internet is talking about Jack it is like he has a few months to live. Am I the only one thinking they are making a way big deal out of something we live with everyday?
Perhaps it is because I have seen the worst of the worst in my line of work but this is a nasty disease and frankly there are times when I think a terminal diagnosis would be a blessing compared to what my future might be so I totally understand Sharon's devastation at this stage in the process.He is your friend, your partner, your defender, your dog. You are his life, his love, his leader. He will be yours, faithful and true to the last beat of his heart. You owe it to him to be worthy of such devotion.
Anonymous
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Originally posted by lisa1014 View PostOk so I was diagnosed last year and I am watching Sharon Osborn on the talk and thinking man he isn't dying. I know this disease is a bad thing but I feel like the way the tv and internet is talking about Jack it is like he has a few months to live. Am I the only one thinking they are making a way big deal out of something we live with everyday?
Rest assured, though, the initial diagnosis was a total freak out. I got my diagnosis, took to my bed, and waited to die. Next thing you know, I couldn't stand lying in bed for a minute longer and remembered that line from the movie, Shawshank Redemption that you can either get busy living or get busy dying. Well, I got busy living and it's been about an 8 year roller coaster ride but no one can make me apologize for totally freaking out when this all first went down, beginning with that deafening first trip down the MRI tube.
At least Sharon is real about it all, which is pretty unusual for the Hollywood sect.Tawanda
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Diagnosed with Multiple Sclerosis 2004; First sign of trouble: 1994
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Ok maybe I was having a bad day yesterday. I understand it is a major blow to the entire family. Maybe I am upset at how my family is handling my dx.
Anyway now GMA just announced the good new is it is "very treatable" ok am I wrong? I was told my MS is not treatable just the symptoms and my DMD will cut down on my flares and not cure me. So how can they say it is very treatable. OK maybe I need to get away from the TV and go to work.
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Originally posted by lisa1014 View PostOk maybe I was having a bad day yesterday. I understand it is a major blow to the entire family. Maybe I am upset at how my family is handling my dx.
Anyway now GMA just announced the good new is it is "very treatable" ok am I wrong? I was told my MS is not treatable just the symptoms and my DMD will cut down on my flares and not cure me. So how can they say it is very treatable. OK maybe I need to get away from the TV and go to work.
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Originally posted by lisa1014 View PostOk maybe I was having a bad day yesterday. I understand it is a major blow to the entire family. Maybe I am upset at how my family is handling my dx.
Anyway now GMA just announced the good new is it is "very treatable" ok am I wrong? I was told my MS is not treatable just the symptoms and my DMD will cut down on my flares and not cure me. So how can they say it is very treatable. OK maybe I need to get away from the TV and go to work.
I find it disgraceful and irresponsible that anyone would have the nerve to call MS "very treatable". It is a chronic, progressive disease that has the potential to ruin lives.He is your friend, your partner, your defender, your dog. You are his life, his love, his leader. He will be yours, faithful and true to the last beat of his heart. You owe it to him to be worthy of such devotion.
Anonymous
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"Not cureable but highly treatable" (?)
Originally posted by lisa1014 View PostAnyway now GMA just announced the good new is it is "very treatable" ok am I wrong? I was told my MS is not treatable just the symptoms and my DMD will cut down on my flares and not cure me. So how can they say it is very treatable. OK maybe I need to get away from the TV and go to work.Tawanda
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Diagnosed with Multiple Sclerosis 2004; First sign of trouble: 1994
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I agree!
Originally posted by Jules A View PostLol, yeah the television isn't always our friend.
I find it disgraceful and irresponsible that anyone would have the nerve to call MS "very treatable". It is a chronic, progressive disease that has the potential to ruin lives.
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Thanks Sharon!
Apparently Jack Osborne was too minor of a celebrity to generate much buzz. I guess he's no Annette Funicello or Richard Pryor, because it seemed like this story pretty much fizzled after about half a day! We should thank his Mom, Sharon, for her emotional outburst. Otherwise his M.S. diagnosis may have never hit the media in the first place!
As Rodney Dangerfield would say, this disease gets no respect!Tawanda
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Diagnosed with Multiple Sclerosis 2004; First sign of trouble: 1994
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Kellygrn, I am newly diagnosed and almost every doctor I have spoken to has mentioned how "lucky" I am to have been diagnosed at this time. You know as opposed to 15 or 20 years ago, I guess because of DMDs. Actually lots of ordinary joes share that belief, because I've heard it many times talking to friends and coworkers.Maybe it's because at first I took my diagnosis very badly, so people would always say things like, "It's not the death sentence it used to be".
I really hate it when people say things like that or "you should be happy because other people have it much worse than you do". It's terrible and I do not believe people should measure themselves against other people miseries to make themselves feel better.You can't stop washing your feet just because you're afraid you'll fall in the shower.
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