question about IVIG

[turtle29]

does anyone know about this? can anyone give me any info about what it is and if it works for MS???


Any help would be awesome!!!
Thank you so much

[KarenR]

IVIG is not a drug. It is Intravenous immunoglobulin. It is the pooled antibodies extracted from the plasma of over 1,000 donors.

I've been on monthly IVIG infusions for a little over a year. I "flunked" Rebif, Copaxone & Tysabri, so this was pretty much my only choice, for now.

IVIG seems to be keeping my MS in check. I haven't had a flare since starting it.

It is "off label" for MS. So, if you are thinking of taking it you may have to appeal to your insurance company for coverage. I did.

Be well,

[hunterd]

I like Karen get IVIG infusions once monthly. I built-up and the bodies to Ty, Avonex, and I'm on my way to building them up to Copaxone. I am not a candidate gilenya, because of an existing heart issue. My last MRI was unchanged from the previous MRI. So it would appear that it's working.

[sgrammied]

I have been on IViG for almost 6 years now. I did have a year off 3 years ago because of insurance, but did get back on, I was having the IVs every 2 weeks at 30gs each time.
I had to go off for 6 months, my body did not like it, so we had to give my body a rest. I have started back on it at 60gs weekly for 6 weeks. Then it is a wait and see. Maybe back to every two weeks. I had a couple of minor flares while on IViG. Since March I have been in a very bad flare. It helps me very much. I get more energy and am able to do more. I am hoping it will help this flare.
Good luck with it. I hope it does the same for you as it does me.