Hello. I have had MS for ten years. About three years ago I had a major attack that left me disabled. I was placed on Tysabri and Trileptal. I switched doctors and the new outfit (Johns Hopkins) started to investigate the Trileptal angle.
They say Trileptal has no effect on MS. The 2400 mg I was taking a day was actually the cause of the vertigo and periods of brain slowing. The old neurologist blamed MS. In addition to the day to day problems, my body had become addicted to the Trileptal and suffered withdrawals after 24 hours. This withdrawal was also misdiagnosed as an effect of the MS. So I was fighting the MS AND the medication.
I still have significant MS-related cognitive issues however all the other stuff has gone away since I have been taken off Trileptal. Has anybody else had any similar reaction to high doses of Trileptal?
Mike
They say Trileptal has no effect on MS. The 2400 mg I was taking a day was actually the cause of the vertigo and periods of brain slowing. The old neurologist blamed MS. In addition to the day to day problems, my body had become addicted to the Trileptal and suffered withdrawals after 24 hours. This withdrawal was also misdiagnosed as an effect of the MS. So I was fighting the MS AND the medication.
I still have significant MS-related cognitive issues however all the other stuff has gone away since I have been taken off Trileptal. Has anybody else had any similar reaction to high doses of Trileptal?
Mike
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