Hi, is anyone else on here participating in the Actelion drug trial? I'm coming up on two years in the trial, and I would love to hear from others. I just had my first serious relapse (ever), but pending the results of my next MRI I will probably stay on the drug. The lesions in my brain have decreased in size and activity over the past year and a half. This relapse caused me to lose almost all coordination in my left arm and leg, so my medical team think the activity is in my cervical spine, and I'll be having an MRI of that area soon. I am better now, for the most part.
Also, please feel free to respond to this if you are in any other drug trial, as I would love to hear the experiences of others in trials, especially some of the lesser known ones like ACT and ONO.
Also, please feel free to respond to this if you are in any other drug trial, as I would love to hear the experiences of others in trials, especially some of the lesser known ones like ACT and ONO.
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