In about March, 2012, I will be entering a new clinical trial for Ocrelizumab and its effects on PPMS. It is a double-blind placebo type test (or that is close). It depletes one type of B-cell. Worrisome that is causes immune deprivation. I will keep people posted on if it helps: balance (walking, standing) & fatigue (my primary difficulties).
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Ocrelizumab for PPMS
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Thanks Sparky 10
I too hope I get the "good" stuff when the clinical trial for ocrelizumab starts in about March of 2012. I do not know all the details of the ocrelizumab testing and will not until the trial starts in about March. But I have a most positive outlook and think anything can be better than the progressive disability that I am experiencing. I'll keep the group posted - they will know as I know!!
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ocrelizumab
HI,
I HAVE JUST STARTED THE OCRELIZUMAB / REBIF CLINICAL TRIAL YESTERDAY. I WOULD LOVE TO TALK TO ANYONE ELSE WHO IS DOING THIS STUDY. I HAVE RECENTLY BEEN DIAGNOSED WITH RRMS AND MY DOCTOR THOUGHT THIS WOULD BE A GOOD CHOICE FOR ME. THE INFUSION WENT WELL, BUT THE REBIF/PLACEBO INJECTION WAS A DISASTER AS I HAVE NEVER INJECTED MYSELF BEFORE. THE NURSE TOLD ME THAT IT WASN'T AS BAD AS I IMAGINED IT WOULD BE BUT IT WAS WORSE! LOL. I JUMP WHEN I FELT THE BURN AND THE NEEDLE CAME OUT AND I LOST MOST OF THE MEDICATION. I WAS IN TEARS, AS I FELT LIKE A HUGE BABY. I HAVE TO INJECT MYSELF TOMORROW AND I AM VERY NERVOUS. I DON'T WANT TO MESS IT UP AGAIN. ANY ADVICE WOULD BE GREATLY APPRECIATED!
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