Today I went to see my neuro and he told me I was Secondary. When I got my DX in April I just assumed it was the regular RRMS as I did'nt even know that there were different types of MS until I got the DX and started visiting this site. This was quite the blow today and what peevs me is that my neuro said if one of the other neuros would have given me a proper DX and started me on a DMD that my outcome might have been different.
I would have to say that when you go to a MS specialist and he tells you that you have had MS for years and can't understand why one of the other neuros had'nt given you a DX that the system is broke and if there is any question about a DX the neuro that is not sure should be mandated that you you be sent to a MS specialist.
At this point and time I have no idea what to expect as I've pretty much have done all the reading I can on RRMS and just thought that I would be there forever and not be slapped yet another time by MS. I guess I just need to let it sink in and start reading what this DX means to me as I know so little about what Secondary is and what effect it has on people and what the outlook is. Nothing like getting bad than worse news in just 6 short months, but on the other hand I know there are lots of people worse off than me and I should count my blessings Thanks for listening
I would have to say that when you go to a MS specialist and he tells you that you have had MS for years and can't understand why one of the other neuros had'nt given you a DX that the system is broke and if there is any question about a DX the neuro that is not sure should be mandated that you you be sent to a MS specialist.
At this point and time I have no idea what to expect as I've pretty much have done all the reading I can on RRMS and just thought that I would be there forever and not be slapped yet another time by MS. I guess I just need to let it sink in and start reading what this DX means to me as I know so little about what Secondary is and what effect it has on people and what the outlook is. Nothing like getting bad than worse news in just 6 short months, but on the other hand I know there are lots of people worse off than me and I should count my blessings Thanks for listening
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