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Diagnosed myself with MS years ago and forgot

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    Diagnosed myself with MS years ago and forgot

    My Mom reminded me of a time from about 6 years ago.
    I had terrible pain in my legs and the only way I could describe it was "My BONES hurt!" I would rub and rub and rub just trying to get deep to the bones because they ached so bad. After about 2 weeks of this pain and a night of no sleep and tears with my husband rubbing my legs and me telling him rub harder to get to the bone...he insisted I get to the Dr.
    Well with the use of the internet, which my Dad says my daughter and I need to stay off of when we are sick, I looked up my symptoms, especially the "bone pain" and I kept coming up with MS.
    I went to my Dr convinced I had MS. He laughed at me and said no I needed a cortizone shot in my back. I thought he was crazy because my back felt absolutely fine.
    I got the shot and yes the pain did go away and I never thought about it again.
    My Mom just said to me...."You kind of called this a few years ago didn't you Val?"
    Funny how that happened ...out of all the diseases I went to the Dr convinced I had....I end up with...jinxed myself or just luck.
    DX 10/26/11

    #2
    Oh My Gosh...Limboland for 6 years???
    These last 8 months there have almost driven me insane...lmao
    DX 10/26/11

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      #3
      Interesting! I think you had good instincts!

      I guess I was technically in limbo land for six years, since I was just shy of an official diagnosis in 2001 and then had nothing (other than a couple mild chronic symptoms) for 6 years. It wasn't so bad.
      2001: 1st 2 relapses, "probable MS." 2007: 3rd relapse. Dx of RRMS confirmed by MS specialist. Started Cpx. (Off Cpx Feb 08-Mar 09 to start a family; twins!) Dec '09: Started Beta. Oct '13: Started Tecfidera. May '15: Considering Gilenya.

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        #4
        I have had what I call "Episodes" the last 6 years. All but one was diagnosed as simple vertigo. I knew they were wrong and would leave completely frustrated and defeated. I diagnosed myself 2 years ago with Aspartame Toxicity, again with the help of the WWW. I stopped drinking Diet Pepsi and started to feel better within a month. I had an "I'm brilliant!" moment then. Guess I'm not so brilliant anymore...lol
        One Dr told me possible West Nile...ok, that, maybe. I knew nothing about it. I felt absolutely horrible for 4 weeks then symptoms faded and I never called the Dr back to get the results for my West Nile Blood test. If I would have I think he would have ordered all the tests then and I could have started this diagnosis process 4 years ago as the Dr seemed to want to get to the bottom of it. My bad.
        Well I am here now, better late than never right?
        DX 10/26/11

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          #5
          I'm so sorry you have had bone pain.
          That was a very prominent symptom I had years before I was diagnosed, too.

          (I was diagnosed way before the internet days,v which makes me feel old)

          I just now looked up MS and Bone Pain.
          Interestingly, Vitamin D deficiency was listed.

          My Drs have told me in just the past 4 years I am low in Vitamin D. I bet I was years ago, too.

          Consider taking extra for your bones now. My Dr has me taking an extra 2,000 IU now.
          My latest test hows I am no longer way below healthy levels.

          Welcome to this site.

          http://www.medicalnewstoday.com/releases/4836.php

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            #6
            I am in limbo-land now, and know full well what you mean by the bone pain that aches so horribly. My legs, especially from knees down, hips, and arms from wrist to elbow, ache quite often. It is one of the most aggravatingly painful things i have ever experienced. It seems like no over the counter pain meds will touch it, and no matter how much you rub the aching areas, it never subsides.

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