Hi to all.
MVM I would be screaming as well. UGH. I have dealt with Dr's at Emory for my MIL and they made me want to scream as well. She needed surgery for a hernia that had kinked her bowel and she couldn't eat anything for months. Was living off of soup. From the time we first saw the DR to surgery was over 3 months. I thought that was ridiculous!!! She was wasting away to nothing!
Limbo is so frustrating. The first 6 months I was so upset that they thought I had some auto immune disease but didn't know what it was. Initially they thought it was MS then I had a low positive ANA so Lupus was the talk.
It made me a nervous wreck but as time has gone by I have relaxed and after a year has gone by with continued symptoms (new and old) waxing and waning. I have found peace. I personally believe that God will bring it all together in his time. I have to rest in that.
Currently MS is the only possibility on the table for me. All other possibilities have been ruled out. That part of things drove me nuts all the testing. I must say that I am glad to be here for now. From my understanding they are waiting for another flare or new lesions. So I wait......
My struggle right now is balance . Because when I feel good I want to do everything that needs be done, and I do so. Then I end up with crushing fatigue and nothing gets done. So if any of you have any ideas how to balance this. I would be greatful.
((Hugs to all))
Lori
MVM I would be screaming as well. UGH. I have dealt with Dr's at Emory for my MIL and they made me want to scream as well. She needed surgery for a hernia that had kinked her bowel and she couldn't eat anything for months. Was living off of soup. From the time we first saw the DR to surgery was over 3 months. I thought that was ridiculous!!! She was wasting away to nothing!
Limbo is so frustrating. The first 6 months I was so upset that they thought I had some auto immune disease but didn't know what it was. Initially they thought it was MS then I had a low positive ANA so Lupus was the talk.
It made me a nervous wreck but as time has gone by I have relaxed and after a year has gone by with continued symptoms (new and old) waxing and waning. I have found peace. I personally believe that God will bring it all together in his time. I have to rest in that.
Currently MS is the only possibility on the table for me. All other possibilities have been ruled out. That part of things drove me nuts all the testing. I must say that I am glad to be here for now. From my understanding they are waiting for another flare or new lesions. So I wait......
My struggle right now is balance . Because when I feel good I want to do everything that needs be done, and I do so. Then I end up with crushing fatigue and nothing gets done. So if any of you have any ideas how to balance this. I would be greatful.
((Hugs to all))
Lori
Comment