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    #16
    "Unremarkable" is just what we like to hear.

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      #17
      Originally posted by Alicious View Post
      "Unremarkable" is just what we like to hear.
      Yeah, I've never been so happy to be unremarkable.
      2001: 1st 2 relapses, "probable MS." 2007: 3rd relapse. Dx of RRMS confirmed by MS specialist. Started Cpx. (Off Cpx Feb 08-Mar 09 to start a family; twins!) Dec '09: Started Beta. Oct '13: Started Tecfidera. May '15: Considering Gilenya.

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        #18
        My neuro at first gave me a choice of first line meds even though sx indicated spinal involvement. After the ophthalmologist dx retrobulbar neuritis, (and before I had chosen my meds) the neuro gave me no choice but betaseron because it is the more aggressive interferon (the 1b).

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          #19
          Originally posted by hope32 View Post
          Can you explain what you mean about "30% drugs" versus "50-60% drugs"? Is that the rate they reduce relapses? (I have just started researching G and Ty and don't know much about them yet.) Do you think this push is a positive thing?
          The standard MS drugs, CRAB drugs copaxone,rebif,avonnex & betaseron are 30% effective. The new drugs that are out are 50-60& effective, with greater side effects as a trade off. if the 30% meds are effective enough stay on those, but if they are not effective enough move to one of the new meds with greater effectiveness. imo i think the older 30% meds will eventually be no longer used in favor of the newer meds.

          the most standard ms progression is from the brain down the spinal cord. your ms is moving in the direction of the most average progression & spine lesions cause the most visible symptoms. i think she just wants to stop your ms from going lower in the spine and will use the newer meds to do so. the newer oral meds are 50% effective.
          xxxxxxxxxxx

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            #20
            Got it. Thanks so much for explaining!
            It did turn out that my C-spine is clear of lesions; we still need to figure out what's causing my symptoms though. I have a follow-up appt on Tuesday to go over my MRIs and figure out what other testing will be necessary.
            2001: 1st 2 relapses, "probable MS." 2007: 3rd relapse. Dx of RRMS confirmed by MS specialist. Started Cpx. (Off Cpx Feb 08-Mar 09 to start a family; twins!) Dec '09: Started Beta. Oct '13: Started Tecfidera. May '15: Considering Gilenya.

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              #21
              Originally posted by 0485c10 View Post
              The standard MS drugs, CRAB drugs copaxone,rebif,avonnex & betaseron are 30% effective. The new drugs that are out are 50-60& effective, with greater side effects as a trade off. if the 30% meds are effective enough stay on those, but if they are not effective enough move to one of the new meds with greater effectiveness. imo i think the older 30% meds will eventually be no longer used in favor of the newer meds.

              the most standard ms progression is from the brain down the spinal cord. your ms is moving in the direction of the most average progression & spine lesions cause the most visible symptoms. i think she just wants to stop your ms from going lower in the spine and will use the newer meds to do so. the newer oral meds are 50% effective.
              I disagree, in my experience, the 30% Avonex caused much more adverse affects for me and I had none of the negative side effects associated with Tysabri. I'd be careful putting out information that discourages use of the 50-60% drugs.

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                #22
                I agree don't rule out oral drugs

                Originally posted by BadAttitude View Post
                I disagree, in my experience, the 30% Avonex caused much more adverse affects for me and I had none of the negative side effects associated with Tysabri. I'd be careful putting out information that discourages use of the 50-60% drugs.
                There is no such thing as a risk free MS drug. Don't arbitrarily rule out meds. The drug that doesn't work for one person may be the MS drug that works for you. That's why you and your neurologist make the decision togeher

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                  #23
                  Originally posted by Wonderdog lady View Post
                  There is no such thing as a risk free MS drug. Don't arbitrarily rule out meds. The drug that doesn't work for one person may be the MS drug that works for you. That's why you and your neurologist make the decision togeher
                  Are you responding to my post, or the OP's post? Or augmenting my post with a more direct statement? What you wrote is what I was initially trying convey.

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                    #24
                    Originally posted by BadAttitude View Post
                    Are you responding to my post, or the OP's post? Or augmenting my post with a more direct statement? What you wrote is what I was initially trying convey.
                    Ooops. Coiuld your headline been any more obvious? SOrry, I missed that. I was conflicted between "opposites" whole reading this because my advice conflicted with my experience with Gilenya. I had a completely unsatisfactory response to Gilenya along with negative side effects, but I wouldn't want to dissuade anyone from trying it. We're all different, and other people credit Gilenya with good results. I just drew the short straw in that particular instance.

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                      #25
                      C-spine

                      I'm happy to see people with c-spine lesions with good results. I've been on Tecfidera for 6 months and just had my follow up mri. My brain showed significant improvement but my c-spine lesions expanded from my original mri.

                      This was my first mri with contrast and my neurologist said none of the new lesions were active but some where bigger than when I was diagnosed. There were one or two new ones also. I have no new symptoms and some improvement since starting tec.

                      My neurologist didn't seem super concerned at this time but does want follow up mris in 6 months. The original plan was no more mris for at least a year. Has anyone gone through this? Did you get better results at one year?

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