"Unremarkable" is just what we like to hear.
Announcement
Collapse
No announcement yet.
Question about c-spine lesions
Collapse
X
-
Originally posted by Alicious View Post"Unremarkable" is just what we like to hear.2001: 1st 2 relapses, "probable MS." 2007: 3rd relapse. Dx of RRMS confirmed by MS specialist. Started Cpx. (Off Cpx Feb 08-Mar 09 to start a family; twins!) Dec '09: Started Beta. Oct '13: Started Tecfidera. May '15: Considering Gilenya.
Comment
-
Originally posted by hope32 View PostCan you explain what you mean about "30% drugs" versus "50-60% drugs"? Is that the rate they reduce relapses? (I have just started researching G and Ty and don't know much about them yet.) Do you think this push is a positive thing?
the most standard ms progression is from the brain down the spinal cord. your ms is moving in the direction of the most average progression & spine lesions cause the most visible symptoms. i think she just wants to stop your ms from going lower in the spine and will use the newer meds to do so. the newer oral meds are 50% effective.xxxxxxxxxxx
Comment
-
Got it. Thanks so much for explaining!
It did turn out that my C-spine is clear of lesions; we still need to figure out what's causing my symptoms though. I have a follow-up appt on Tuesday to go over my MRIs and figure out what other testing will be necessary.2001: 1st 2 relapses, "probable MS." 2007: 3rd relapse. Dx of RRMS confirmed by MS specialist. Started Cpx. (Off Cpx Feb 08-Mar 09 to start a family; twins!) Dec '09: Started Beta. Oct '13: Started Tecfidera. May '15: Considering Gilenya.
Comment
-
Originally posted by 0485c10 View PostThe standard MS drugs, CRAB drugs copaxone,rebif,avonnex & betaseron are 30% effective. The new drugs that are out are 50-60& effective, with greater side effects as a trade off. if the 30% meds are effective enough stay on those, but if they are not effective enough move to one of the new meds with greater effectiveness. imo i think the older 30% meds will eventually be no longer used in favor of the newer meds.
the most standard ms progression is from the brain down the spinal cord. your ms is moving in the direction of the most average progression & spine lesions cause the most visible symptoms. i think she just wants to stop your ms from going lower in the spine and will use the newer meds to do so. the newer oral meds are 50% effective.
Comment
-
I agree don't rule out oral drugs
Originally posted by BadAttitude View PostI disagree, in my experience, the 30% Avonex caused much more adverse affects for me and I had none of the negative side effects associated with Tysabri. I'd be careful putting out information that discourages use of the 50-60% drugs.
Comment
-
Originally posted by Wonderdog lady View PostThere is no such thing as a risk free MS drug. Don't arbitrarily rule out meds. The drug that doesn't work for one person may be the MS drug that works for you. That's why you and your neurologist make the decision togeher
Comment
-
Originally posted by BadAttitude View PostAre you responding to my post, or the OP's post? Or augmenting my post with a more direct statement? What you wrote is what I was initially trying convey.
Comment
-
C-spine
I'm happy to see people with c-spine lesions with good results. I've been on Tecfidera for 6 months and just had my follow up mri. My brain showed significant improvement but my c-spine lesions expanded from my original mri.
This was my first mri with contrast and my neurologist said none of the new lesions were active but some where bigger than when I was diagnosed. There were one or two new ones also. I have no new symptoms and some improvement since starting tec.
My neurologist didn't seem super concerned at this time but does want follow up mris in 6 months. The original plan was no more mris for at least a year. Has anyone gone through this? Did you get better results at one year?
Comment
Comment