Announcement

Collapse
No announcement yet.

Are you too tired to take care of yourself?

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    #31
    I completely relate

    I have literally gone over 2 weeks without showering because I'm too tired & my constant migraines cause me to not even get out of bed.

    Comment


      #32
      Modifying your routine

      I am very, very pale and need some color on my face.
      Between the poor vision and limited range of motion i wanted to find something easy and quick.

      I use xxx brand of the mineral powder makeups now.
      The ones you can buy in the drugstore.
      Sweep on the powder, the blush they have eyeshadows that are blended colors so you dont have to try to highlight etc, lip gloss and I'm done.
      Takes maybe 5 mins sitting on the side of my bed.

      Hair? It's short and wash and wear! I tell the girl that cuts it, no gel, no hair dryer, no curling iron.

      Clothes are simple black, white and 2 favorite colors (for me it's pink or purples).
      So everything matches.

      Invest in a good clear combination base/top coat nail gloss. Go to the nail place every payday and get a manicure and ask them to trim your toe nails and change the polish if you can't afford the pedicure but try to budget for a pedicure every 3 months.

      You really will be surprised that even on the days you feel like no energy just clean clothes and lip gloss will make you feel human.
      Faith, Hope & Love
      Gina
      MS 1988 SPMS 2005

      Comment


        #33
        I call it the dark place...
        Some days I just don't feel like even brushing my teeth,but make myself of course.

        I do some how walk at least 1 to 2 miles a day. But with the summer heat coming on it is really hard to make myself.

        Good luck in this fight,everyone has given us really great tips!!

        aly
        RRMS-2007-2012
        SPMS-2012
        Copaxone Feb,2007- 2008
        currently on Rebif

        Comment


          #34
          TOO TIRED

          I KNOW WHAT YOU MEAN. IF I DON'T CARE ABOUT MY MAKE-UP, TEETH, ETC. I KNOW IM ON A DOWNWARD SLIDE, BECAUSE THAT ISN'T THE USUAL ME.

          SADLY- THE DR DOESN'T SEEM TO THINK THAT IS A SIGN OF ANYTHING.

          I THINK ITS A SIGN THAT I NEED AN ENERGY BOOST!!

          Comment


            #35
            Originally posted by maryann v View Post
            I KNOW WHAT YOU MEAN. IF I DON'T CARE ABOUT MY MAKE-UP, TEETH, ETC. I KNOW IM ON A DOWNWARD SLIDE, BECAUSE THAT ISN'T THE USUAL ME.

            SADLY- THE DR DOESN'T SEEM TO THINK THAT IS A SIGN OF ANYTHING.

            I THINK ITS A SIGN THAT I NEED AN ENERGY BOOST!!
            It really stinks when merely brushing your teeth is like climbing Mt. Everest!
            Tawanda
            ___________________________________________
            Diagnosed with Multiple Sclerosis 2004; First sign of trouble: 1994

            Comment


              #36
              Sooooo glad you started this thread, and thankful to all who responded. I am sitting here with no makeup, haven't bathed or washed hair in 2 days (have brushed hair and washed face). I think some of it has to do with the depression that accompanies this disease. Like looking at a rock and "seeing" a mountain.
              Live simply. Love generously. Care deeply. Speak kindly.

              Comment


                #37
                I was dx with MS last November. Before the MS, I used to dye my hair all the time. I mean bleach it, and dye it pink or blue, etc....
                The last time I bleached my hair (underneath) was around Xmas. I tried to dye the top fuschia, and it kinda goofed up.
                That was two months ago. I have horrible roots, and the fuschia dye has kinda washed out.
                I just can't get myself to fix it. Dying my hair was like a hobbie for me, and now I can't be bothered
                Dx 11/09
                Aubagio since 09/15

                Comment


                  #38
                  to tired

                  I have just been told I have ms on may 2010 . I have not felt well for about 4 years. I have been so tired for more than a year. Now I'm at the point were I don't and can't shower everyday and take care of my house like I used too. It sucks I thought I was the only one feeling this way. But now I know I'm not the only one.

                  Comment


                    #39
                    I wished my husband would read this and....

                    understand what this MonSter is like. Sometimes I have the energy of a vegetable and he is expecting me to hop out of bed and be the person I was when he met me 6 yrs ago. I try to talk with him and explain and even BEG him to please do research on MS(I was dx Oct 09 but officially by my MS specialist in Nov 09.)

                    I am 31 yrs old with 2 children(8 and 11) and we have only been intimate 2 times this whole year! I just don't know if my marriage can withstand this. He is quite older than me and I think he wanted this smart, attractive trophy wife that works to help make a wonderful life for all of us and now since dx, I have gained weight, hardly EVER put on makeup(and makeup is my addiction), cut off all of my hair(12 or so inches) b/c it was just too hard to manage.

                    UGH...I have been on Adderall(on the contrary it makes me sooo sleepy), and now I am on Provigil 200mg twice a day, which doesnt help at all, expecially since I was dx, I haven't had an "up" day since.

                    I just wish that he would talk to me so we could figure this out together, but instead, the fatigue and depression and of his non-existance in our marriage and this disease...He is my biggest stresser, therefore, it seems as though I can't get well b/c I am trying so hard to be the person he met and I can't be... :**(

                    Comment


                      #40
                      Oh my gosh can I relate. I am tired all the time. Prior to my dx in Aug. of 09, I thought it was due to my job.

                      P used to wor 12-18 hour days 3-4 days a week.

                      Now since my Dx after my first big relapse, It takes all my energy to do anything.

                      I take Nuvigil so I can work a 8 hour day, but I haave lost interest in every thing from grocery shopping, make- up the whole gamut.

                      I have lost 24 pounds from stress and simply mot caring to eat. Good thing my mom is close by and often gives me dinners or Id exist on fruit alone!

                      Its nice to learn Im not alone! I have learned that I really have to make myself do everything, its to easy just to give up..I keep pushing as tired as I may be.

                      I hide it well, but if I could stay in bed I would. Too many responsibilities.

                      Like I musst feed mygirls(two cats) They are relentless when hungry which is good it gives me motivation.

                      And I have to work, Im single, I need health insurance, so I push forward..no make up, graying hair but teeth brushed...lol

                      Thanks all!! I am not alone!! It sucks having MS!!!!!!!!!

                      Comment


                        #41
                        Chin Up Lizzy!

                        Originally posted by bizzylizzy06 View Post
                        understand what this MonSter is like. Sometimes I have the energy of a vegetable and he is expecting me to hop out of bed and be the person I was when he met me 6 yrs ago. I try to talk with him and explain and even BEG him to please do research on MS(I was dx Oct 09 but officially by my MS specialist in Nov 09.)

                        I am 31 yrs old with 2 children(8 and 11) and we have only been intimate 2 times this whole year! I just don't know if my marriage can withstand this. He is quite older than me and I think he wanted this smart, attractive trophy wife that works to help make a wonderful life for all of us and now since dx, I have gained weight, hardly EVER put on makeup(and makeup is my addiction), cut off all of my hair(12 or so inches) b/c it was just too hard to manage.

                        UGH...I have been on Adderall(on the contrary it makes me sooo sleepy), and now I am on Provigil 200mg twice a day, which doesnt help at all, expecially since I was dx, I haven't had an "up" day since.

                        I just wish that he would talk to me so we could figure this out together, but instead, the fatigue and depression and of his non-existance in our marriage and this disease...He is my biggest stresser, therefore, it seems as though I can't get well b/c I am trying so hard to be the person he met and I can't be... :**(
                        Hello Lizzy,
                        Sorry for your situation. Many men around like your husband on this site, and I wish I had the answers. My husband was a real schmuck at the beginning of my M.S. diagnosis, but has gotten better with time (not like he's Mr. Perfect now, however!). At first I was scared to death of his leaving me, but as I started to adjust to my diagnosis and got on SSDI, I realized that if he leaves, he leaves, and to borrow a line from Donna Summer (?), I WILL SURVIVE! I think we both try to be good parents, and that is probably why we are still afloat.

                        As far as your looks go, at 31, you are young and can get a way with a good skin regimen that you can do while you shower. Leave the makeup for special occasions, or throw on a dash of lipstick now and then. Also, if you are still eating crap, M.S. is a great reason to stop. Your skin really is reflective of your diet and lots of fruits and veggies will go a long way in plumping up your skin and giving it a nice glow.

                        You had those kids young...M.S...and a husband who is not supporting you. Life hasn't been easy for you, but when you feel you are at your bottom, there is no way to go but up.

                        (By the way, my email is in my profile if you would ever like to have a side-bar).

                        Hang in there!!!!
                        Tawanda
                        ___________________________________________
                        Diagnosed with Multiple Sclerosis 2004; First sign of trouble: 1994

                        Comment


                          #42
                          Originally posted by fishead View Post
                          Sooooo glad you started this thread, and thankful to all who responded. I am sitting here with no makeup, haven't bathed or washed hair in 2 days (have brushed hair and washed face). I think some of it has to do with the depression that accompanies this disease. Like looking at a rock and "seeing" a mountain.
                          whoa, did u get in my head & write this? except I'm lying here. hate that so many of us ladies feel this way.
                          i used to hold myself to a strict rule of dressed by noon, shower every other day (w/ chair, hose shower head, rails, etc.)
                          now it's every 3rd day, dressed can even mean big t (bra optional) & get this! those men's knit boxers in a larger size. they're great! they look like short w/ a big t & you don't have 2 worry about underwear & shorts. how lazy is that? 'cept no pockets, oh well.
                          dry shampoo works for us oily haired ppl. not sure where 2 get it . navy DD left a bottle when came back from a ship. it's wonderful, can't tell u didn't have to do shower. baby wipes r great too.
                          elec brush is nice if u can hold on to it, it does all the work. my dr. offers laser leg hair treatments but at $!00, cant' afford it. wd. be great tho.
                          take care everyone, God bless ya
                          "All things are possible for those who believe." Jesus

                          Comment


                            #43
                            I know how you feel

                            I can relate to everyone because I've had MS since 1991. One day I was in bed and got up to go to the bathroom. I never made ite. Down to the floor I fell, but not only that. My entire right side went numb. I couldn't feel anything or move anything. My chest hurt...I thought heart attack. I can't believe it! Lucky for me (I guess)...my husband was there. He called the doctor who told us to get to the emergency room. Lots of tests, doctors checking me out.

                            From there I went to have mri...ekg, lab tests...the whole nine yds. There was a period where I lost sight in right eye. Before that I would see spots, pictures, images running back and forth. I saw ophthalmologist who said it was optic neuritis....another sign of Ms, cramps in my feet. I had lots of them in my 20's and into 30's. I would just massage them out and go about my day. Years later at 39 being told we can confirm from tests and events that you have MS. It was awful to hear that. I had 2 children in high school and I wanted to see what they would become, get married, see my grandchildren grow up. This disease is awful, very tiring, having no energy some days....feeling good sometimes, tired of taking meds all the time. I keep a rx diary because sometimes I forget alot.

                            The depression gets the best of me at times. I love reading and watching favorite movies. My husband and I haven't stopped living. I have 2 grandchildren, lost my beloved son, my daughter is a firefighter (Captain). I have become adventurous. I love horses so every time we go on vacation, we go riding. Years ago I started a diary for my children. I wanted them to know me, things I loved, how I loved them, wanted always the best for them. I've told my daughter they are my gift to her. I want her to add to them or begin her own. Every day I wake up, decide to get up anyway...even though you know it's hard, you feel bad..ask yourself will today be better than yesterday? So---I decide to get up because I could be worse. I am blessed to wake up in this United States of America where I am free, no longer bound, no chains holding me. Thank the Lord, I'm free. It's just a blessing!

                            My husband helps me everyday when my energy runs low. Some days I ask him to walk with me. We hold hands. Sometimes we don't need words. If you have a girlfriend you're close with-call her. Just ask if you can talk. Sometimes my husband is tired from day to day tasks and he doesn't understand sometimes. I have connected with MSFriends-toll free number-24 hr help line. There is always someone to talk with. It was a day when I was up to my neck with everything. I wans ready to blow....I felt like I wanted to take off all my clothes and run outside....it's crazy. If you give in to this, MS has won. I won't let it do me in. I'm a fighter. I'm a winner. I'm living with MS. I push myself to do things. When I'm up to it, I still gocery shop, not too many things though. Showering is hard but I put the chair in the shower and use the handheld shower head. When I'm too weak to do it alone, my husband helps me. I've been in the hospital twice this year, one surgery and one exasterbation. It's been rough; but I made it through.

                            We are going on vacation for a week to celebrate our 41st wedding anniversary. I know we aren't newlyweds anymore; but it's nice to get away to a different place, leave the familiar behind. I don't wear makeup anymore, just make it simple with a lip gloss. One day I was having a hot flash and the hair just made it worse. I went to the dresser, got the scissors and cut off all my hair. It was freeing! Now I go to the barber once or twice a month for a touch up. It's easy for me. My husband has gotten used to it now. I've so over the hair and makeup thing! I need things simple now. Now time to sweat the small stuff! I used to want everything in the house just so....neat and tidy.

                            Well...no more. I had become my mother....busying herself with this and that....no time for herself. Well Mom, thank you for everything but your daughter has realized that Rome wasn't built in a day and I don't live in Rome. I want to encourage everyone to be good to yourself, love yourself, do what comforts you, helps you, makes you feel happy. I have a friend in a nursing home. I go to visit her. I make her laugh and she makes me laugh, too. I'm using my Mother's cane now because it helps me to walk better. I'm going to physical therapy twice a week. I'm thankful for what I can do. Reading each of your messages has help me. Thank you so much. You have been a blessing to me!


                            **post edited by Moderator to break into paragraphs for easier reading! many people with MS have visual difficulties that prevent them from reading large blocks of print**

                            Comment


                              #44
                              me too

                              I was a glam girl for years. Actually did Mary Kay very successfully too.

                              But I have now been reduced to taking spunge baths and short hair cuts that can just dry on their own. I am afraid to take a real bath now and haven't been able to shower for years. If I close my eyes I would be on the shower floor, no sense of balance at all. Sponge baths knock the day lights out of me too. It is like a 3 hour event to recoup after. Hate it.

                              Then to add to all that, I get sores in my mouth so I can't even wear my teeth many days. Not pretty to look at for sure. My Mary Kay director would disown me if she saw me now. But you know what,

                              I do what I have to and if someone wants to judge me from my looks rather than my heart or soul, that is their problem, not mine, is the attitude I have adopted. I am clean, and I don't smell, so if after they have walked a mile in my shoes they still feel the same way, oh well!!!!

                              Comment


                                #45
                                Why bother!

                                It is getting hard for me to care about hair and makeup. Why bother when i have alergic reactions to everything and the MS hug makes wearing a bra a living nightmare.
                                Leslee

                                Comment

                                Working...
                                X