JCV-
Fascinating to see the difference in treatment/ advice over there in the USA compared to here in the UK. I and my sister have MS and are both on Tysabri. I am JCV- but never had any other DMD. My risk factor is 1/11000. My sister was jcv- until last month when she flipped to jcv+. She was on 2 DMD's before Tysabri and has been on it for over 4 years. Her risk of PML is now 1/90 so her neurologist in Cambridge, England has advised her to stop. She changes to Fingomolid in 2 months and then will qualify for Campath in a year. My neurologist in London, UK says he would advise her to stay on Tysabri. Seems even the experts can't agree on this issue!
I think it really is a personal decision based on how well tysabri is working for you.
At least here in the UK we don't have to worry about health insurance covering either tysabri or fingomolid as all our treatments are free ( but we do pay 40% tax). Hope you reach the right decision for you. Take Care, Julie
Fascinating to see the difference in treatment/ advice over there in the USA compared to here in the UK. I and my sister have MS and are both on Tysabri. I am JCV- but never had any other DMD. My risk factor is 1/11000. My sister was jcv- until last month when she flipped to jcv+. She was on 2 DMD's before Tysabri and has been on it for over 4 years. Her risk of PML is now 1/90 so her neurologist in Cambridge, England has advised her to stop. She changes to Fingomolid in 2 months and then will qualify for Campath in a year. My neurologist in London, UK says he would advise her to stay on Tysabri. Seems even the experts can't agree on this issue!
I think it really is a personal decision based on how well tysabri is working for you.
At least here in the UK we don't have to worry about health insurance covering either tysabri or fingomolid as all our treatments are free ( but we do pay 40% tax). Hope you reach the right decision for you. Take Care, Julie
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