Hi! I am a newbie here and to MS. I was diagnosed with MS a couple of weeks ago, and I had my first IV steroids infusion last week. The symptom that has had the biggest impact on my life is severe fatigue. I've had several other symptoms like numbness, dropping things, weakness, pain, migraines, vertigo, balance issues, etc., but the fatigue has put my entire life on hold for the moment.
I heard numerous times from friends and the infusion nurses how I would have so much energy after the steroids that I would be cleaning out closets and having trouble sleeping. I'm still waiting for that burst of energy, but it hasn't come at all. In fact, my fatigue is as severe as it was prior to treatment, if not worse.
I feel like I've had a very positive outlook about my diagnosis, and I've been trying to be proactive with my overall health and treatment. I'm a very busy mom of three, school-age kids, and I was working a busy job until the last few months when I started getting so sick.
I pushed so hard to finally get a diagnosis and start treatment, thinking that I might get some normalcy back in my life once I got the steroids. I was on cloud nine the first day of steroids, assuming that I would be feeling better soon. Now that it has been a week and I'm still in bed or on the couch most of the time, I'm feeling really down for the first time about MS.
How long does it take for the steroids to 'kick in'? Is this as good as it is going to get for me?
I am really hoping to have at least a few days of feeling good before I have to start taking betaseron next week. If how I feel now is the good part, I'm really dreading the potential of flu-like symptoms headed my way.
I would greatly appreciate it if someone could share their experiences with me that might give me some hope that I might be able to take part in life again. It would help me to hear that I might still have a shot at getting to a better level of functioning that I am at now.
Six months ago, people used to often tell me, "I have no idea how you do everything that you do." Now, I spend my days mustering up enough energy to take a shower.
Is this going to get any better??
I heard numerous times from friends and the infusion nurses how I would have so much energy after the steroids that I would be cleaning out closets and having trouble sleeping. I'm still waiting for that burst of energy, but it hasn't come at all. In fact, my fatigue is as severe as it was prior to treatment, if not worse.
I feel like I've had a very positive outlook about my diagnosis, and I've been trying to be proactive with my overall health and treatment. I'm a very busy mom of three, school-age kids, and I was working a busy job until the last few months when I started getting so sick.
I pushed so hard to finally get a diagnosis and start treatment, thinking that I might get some normalcy back in my life once I got the steroids. I was on cloud nine the first day of steroids, assuming that I would be feeling better soon. Now that it has been a week and I'm still in bed or on the couch most of the time, I'm feeling really down for the first time about MS.
How long does it take for the steroids to 'kick in'? Is this as good as it is going to get for me?
I am really hoping to have at least a few days of feeling good before I have to start taking betaseron next week. If how I feel now is the good part, I'm really dreading the potential of flu-like symptoms headed my way.
I would greatly appreciate it if someone could share their experiences with me that might give me some hope that I might be able to take part in life again. It would help me to hear that I might still have a shot at getting to a better level of functioning that I am at now.
Six months ago, people used to often tell me, "I have no idea how you do everything that you do." Now, I spend my days mustering up enough energy to take a shower.
Is this going to get any better??
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