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is anyone else doing great on tecfidera?

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    #16
    Hi! I've been on Tec for three and a half months and I had very little s/e. Just some flushing at first, but the baby aspirin took care of it. Doing well!

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      #17
      I wouldn't say I'm doing great, but I am doing well. I have had side effects, but nothing that would make me consider stopping. Some gi problems that stopped about three weeks in. I have some achy weak muscles now and the itching and my balance is a bit iffy, but again its mild enough that it doesn't slow me down. I will be going into month four at the end of the week.

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        #18
        Hi Austin,

        Great to hear you are doing well with Tecfidera. I started in early Jan and the first couple of weeks were fine but week 3 was very rough with stomach pain and major flushing.

        I am happy to say by the end of the week 4 the s/e subsided and now all is good. The only side effect I have occasional insomnia.

        I am one of the folks that had what I consider a rough start but I stuck with and I am glad I did.

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          #19
          I've been on Tec since June and have had no side effects. I love taking a pill rather then giving myself injections!
          I used to be in control of my body. Now the body is in control of me!
          DX RRMS 1997 SX 1995 or earlier
          Breast Cancer 2002 thought the chemo put me into remission. Boy was I wrong!
          DMD Avonex 5/11, Baclofen 60mg 10/2012, Tecfidera 6/19/13

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            #20
            six months

            On Tecfidera for 6 months now. Labs are fine and MRI showed no new lesions. A small amount of flushing first day. I have a somewhat sensitive gut anyway but no real change there. Careful to eat balanced breakfast and then something at night. Making sure both have a small amount of fat. So we'll see. Best to all.

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              #21
              tecfidera

              I have been on tecfidera since Feb 2014. No GI problems and flushing is almost insignificant. I have developed a skin problem that I am seeing a dermatologist for. Not sure if it is from the medication but it started about 3 weeks into the therapy. The dermatologist says the tecfidera is not responsible for the skin issue and the neurologist isn't concerned with it. It's more of a nuisance than anything else.

              The dermatologist calls it Grover's disease which basically is dry skin that shows up as raised red bumps. Being treated for this now.

              Other than that I really like this medication and hope to stay on it.

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                #22
                I did have some side effects in the first several months but I pushed through those and am now doing really great overall.
                2001: 1st 2 relapses, "probable MS." 2007: 3rd relapse. Dx of RRMS confirmed by MS specialist. Started Cpx. (Off Cpx Feb 08-Mar 09 to start a family; twins!) Dec '09: Started Beta. Oct '13: Started Tecfidera. May '15: Considering Gilenya.

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                  #23
                  Hi, I used Copaxone on and off for 4 years. I could not handle the reaction site pain any longer. I am on my 2nd week of Tecfidera. I have experienced the flushing daily, it goes away after 30 minutes. I do seem to have a constant runny nose which is odd being I have never been an allergy sufferer. But so far it beats injections 100%..
                  Diagnosed 2006, RRMS.

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                    #24
                    Thanks for the information. I'm looking into a new med and was concerned but not anymore. Thank you to everyone for the wonderful feedback.

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