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VERY FEARFUL OF MAKING A Switch!!

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    #1

    VERY FEARFUL OF MAKING A Switch!!

    I am sooooo scared of changing meds. Don't get me wrong, I know that I have to, but it still doesn't change that I am scared. I have a doc appt today, I know that I have to have a MRI done, I know that she mentioned to me before to switch to I believe , Tec, Gilenya, and Tysarbi. I am freaking out. Although I am tired of taking a shot everyday (copaxone). My husband said wait until I'm comfortable making the switch, but I'm thinking, will I ever be? How did you guys overcome the fear? Just dive in?
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    #2
    I have never been afraid of the interferons or orals. However I said I would never take Tysabri. I was scared to death of it. It took 2 very active and nasty cervical lesions and months of major back to back flares to convince me otherwise. I was two days from starting Tecfidera before I went into the flares.

    I have very quickly found out my aversion to risk is now low...MS now scares me more. You can read my post in the Tysabri Section of how scared I was and how upset I got at the first infusion if you want a good laugh. Everyone was very kind to me.

    So yes, I jumped right in because I had to. And I am very glad I did. Good luck with your decision.
    Katie
    "Yep, I have MS, and it does have Me!"
    "My MS is a Journey for One."
    Dx: 1999 DMDS: Avonex, Copaxone, Rebif, currently on Tysabri

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      #3
      MS is a scary disease. Giving yourself a shot EVERY DAY isn't something that "scary cats" do!!! LOL

      Just remember that the decision is, or should be yours. If you are doing well with C, then stay on it unless there is a good reason to switch.

      Switching to a new MED should also be largely your decision.

      Good luck!!

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        #4
        I wish there was an easier answer but I think that if you are OK with Copaxone and you don't have issues or side effects on 'C', stay with it. Don't change DMD's if 'C' is working for you. Good luck

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          #5
          Thanks everyone!! My neuro said the same thing, it is my decision. And if I'm ok, no need to rush..

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            #6
            Me too

            My Neuro took me off Rebif, it just wasn't working now my choices are Tecfidera and Tysabri. One is too new the other too scary. My Doc (pushing for tysabri)is sending me to an MS specialist in the area for a second opinion on treatment course, I rather like that idea. I see him in Dec. Personally, I think my Doc just wants someone else to tell me I'm progressive now, lol.

            Peace,
            Anna

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