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So confused.. JC virus?

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    #1

    So confused.. JC virus?

    I have been on Tec since May with an intermission because of an insurance screw up. I had to go back to the half dose because of some gastro issues. I thought I would work my way up again but.....


    My Neuro called me Friday and told me I tested positive for
    the JC virus. Because I am A-fib I can't take a lot of the other
    meds. If any of you are taking Tec and are JC positive I would so appreciate any input.

    Thank you very much.
    And even though the moment passed me by I still can't turn away
    'Cause all the dreams you never thought you'd lose
    Got tossed along the way
    Tags: None
    #2
    I'm on Tecfidera because I tested JCV+. I was on Tysabri, and when I tested positive my doctor told me to stop gettig infusions and wait for BG12 (Tec) to be approved.

    Testing positive is a contraindication for Tysabri patients; if you are JCV+ then your likelihood of getting PML (a potentially fatal neurological disease).

    Comment

      #3
      GooGooGirl,

      Here is a thread that may explain your neuro's concern.
      http://www.msworld.org/forum/showthread.php?t=126640

      Keep us posted about what your neuro says. Wishing you the best!
      Kimba

      “When you change the way you look at things, the things you look at change.” ― Max Planck

      Comment

        #4
        Thanks so much. I am making an appointment with my neuro this week. I feel very overwhelmed.

        I need him to explain some things to me about my options








        And even though the moment passed me by I still can't turn away
        'Cause all the dreams you never thought you'd lose
        Got tossed along the way

        Comment

          #5
          This link might also be helpful:
          https://www.msworld.org/forum/forumdisplay.php?f=80

          By the way, is your Neurologist an MS Specialist?
          MS Specialists are very knowledgeable on this things, as they treat many hundreds or over 1000 MS patients.

          It's fairly straightforward to find an MS Specialist in major metro areas. I rural areas, many go to Neurologists with experience treating MS.

          This is a good link to find Neurologists/MS Specialists near where you live, if in the U.S.:
          http://patients.aan.com/findaneurologist/

          Best Wishes!
          Alan

          Comment

            #6
            Jcv positive is not a contraindications for any of the meds except tysabri. I have been on all of the oral drugs after being taken off Tysabri because of being positive. Good luck but I wouldn't worry

            Comment

              #7
              Thanks, Laurasari..
              And even though the moment passed me by I still can't turn away
              'Cause all the dreams you never thought you'd lose
              Got tossed along the way

              Comment

                #8
                I also came off of Tysabri because I am jcv+. I will be starting TEC to tomorrow.
                God Bless Us All

                Comment

                  #9
                  Tec CAN cause PML.

                  Actually, Tecfidera can potentially cause PML. It, along with monomethyl fumarate, is also part of a psoriasis drug called Fumaderm, which has caused many cases of PML. (Not nearly as many as Tysabri.)

                  It drops white blood counts cell counts, which can give rise to such opportunistic infections as PML. It also works by inducing an anti-inflammatory response by depletion of a major antioxidant called glutathione, which helps to fight off many things in the body, including the JC virus.

                  Not trying to fearmonger. Just sharing research.
                  Diagnosed with RRMS on 3/15/2013...beware the ides of March!
                  Rebif from 5/2013 - 09/2014.
                  Gilenya since 11/2014.
                  Also taking vitamin D3, fish oil, magnesium, and B12.
                  EDSS 3.

                  Comment

                    #10
                    I saw that before I started Tec. But my MS Neuro does not agree. As long as they keep tabs on your WBC. There have been no cases of Pml related. To Tecfidera.
                    Good luck

                    Comment

                      #11
                      If you are taking Tysabri, you might want to check out this thread:
                      http://www.msworld.org/forum/showthread.php?t=128171

                      On the thread above, please watch the video from the CMSC MS Conference about the new JCV Index titer test.

                      If you've already seen this, please excuse the repeat. (There are lots of new people on this thread.)

                      Thanks Everyone!

                      Alan

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