Originally posted by 22cyclist
View Post
I have been diagnosed with TM.
Even with this diagnosis, my MS neurologist says only that he "believes it to be TM." In other words, he is still not sure.
That being said, this new diagnosis came after I wrote him a letter pretty much stating that he had to prove to me that I had MS before I would go on any drug for MS.
I tested negative for all blood tests, my brain MRI showed nothing, I do have a lesion on my cervical spine at this time. My LP (I will not take again, as it was way too risky), was very clear.
I have had one episode where I could barely walk while I was on vacation. I overworked myself, and it was very hot.
The doctor says that I need at least one more exacerbation to make an MS diagnosis.
I really do not want one. Right now I am functioning O.K., so unless things change, "ignorance is bliss."
The MS drugs are so harsh that I agree with Lisa.
Do not take them until you are sure that you have MS.
Good Luck.
Comment