Holding head up

[smnc2002]

Hi,

I was diagnosed with RRMS last year. I know that my legs will feel very weak and tired, even when I have them propped up. Forget crossing my legs while sitting in a chair. I have noticed recently that my neck seems to feel really weak and tired at times and it is all I can do to hold my head up. Does anyone else experience this?

Thank you for any input on this subject.

By the way, yesterday was my birthday and I had a wonderful evening alone with my husband!

Hope everyone has a wonderful and blessed weekend!

SMNC

[mjan]

Just wanted to wish you a belated HAPPY BIRTHDAY..glad you had a nice quiet night with your hubby.

But..yes I do feel like my head is heavy and neck unstable. Not always but more frequently.

Be well my friend,

Jan

[smnc2002]

Thank you Jan for the birthday wishes!

[toot2818]

Belated Happy Birthday

I've had RRMS for 27 years. Can't say my neck has every felt heavy but I do get restless sitting. And crossing my legs is not always easy.

Happy Halloween to you and your husband.

Toot

[sloth]

happy belated B day

I have at times put a pillow under my chin to prop my head up at pc.

So yes my head sometimes feels heavy, I have a head tremor tho' so this just adds to it. Often lying down a bit and resting my big old head restores me (but not always).

Ive always felt like I had a big fat round charlie brown head and indeed ms has show me I do

With my charlie brown head and the tremor... well I just look like a bobble head LOL

[Lendi]

Happy belated birthday. it sounds as though you had a very nice one.

My head feels heavy at time. I jerk even, as though I've fallen asleep but I'm wide awake. Crossing my legs, I think maybe if I were 20 lbs lighter it would help. LOL

[JoanFrances]

Not being able to hold my head up at the end of my work day was one of my very early sx.

So I know exactly how you feel.

When my head/neck feels that way I either lay down and support my neck with a curled up pillow, or sit in my high backed chair with my head resting on it.

[granna]

yes and frightening

My scariest symptom is weakness. At its' worst, I could not hold my eyes open or speak above a very low whisper.
When I am very tired, I am in the recliner with my head back and legs stretched out. My arms have often had a tendency to want to curl in; somehow the effort to keep them outstretched is too much.

For these reasons, I have often had the thought that any progression I may experience could possibly lead to a reclining wheelchair. But.......even at that, it could always be worse!

God bless,
granna

[shemastorm]

Hi,

I sometimes have a problem with a stiff neck. My head sometimes gets stuck to the right, back, or on my chest. My neuro has increased the amount of baclofen that I take. Happy Belated Birthday.

[sloth]

Happy belated birthday. it sounds as though you had a very nice one.

My head feels heavy at time. I jerk even, as though I've fallen asleep but I'm wide awake. Crossing my legs, I think maybe if I were 20 lbs lighter it would help. LOL

Oh my gosh Lendi thanks for posting, I do that to Ive seen it on family videos and I was shocked didnt realize I was even doing that! Thanks for letting me know Im not alone!

[gomer]

I get stiff / sore neck sometimes.......

I got a neck pillow, intended to go around the back, but cna be used in front as well for frontal support. It's compact and travels easily, popular truck-stop item but have seen them in Wall-M. About $10 or less.

Doc Gomer Doctor of, Been There, Done That.

[msedup]

My head feels very heavy sometimes, like I just can't hold it up anymore. I keep telling my husband I want to remove my head and arms so my back and neck can rest.

I guess that heaviness is really weakness? Or muscle fatigue? I'm not sure... but I don't like it.

[tweet067]

My head feel the same! thought it was jst me,,LOL!! Has anyone experinced this>>when trying to cross my legs it feels like my pelvic bone is breaking!!! it hurts so bad i want to cry whn it happens. anyone with this??