I went to see my neurologist yesterday because, I have been experiencing a new symptom since Sunday. Every time I moved my eyes, I would experience an electric shock. It's not L'hermittes because, I wouldn't get the shock if I moved my neck, just my eyes. Weird. Doc has rx'd Acthar Gel for a couple of days. (I've been on a 5 day course before.) His notes say, "Atypical symptoms and no clear objective finding to suggest MS relapse. However giving if the benefit of doubt we will treat her with ACTHAR gel without oral taper."
My last MRI of brain and spine showed no enhanced lesions. My eyes aren't doing the shock thing today but, not for sure it won't appear again. And I have been doing much better since my last relapse from July this year, which affected my mobility and bladder. Would it be wise to take the Acthar Gel if I'm not having a true relapse? I'm so confused. What is your opinion? What would you do? (I know it won't be a professional one but, I'm curious as to what you think.)
My neurologist is not an MS specialist and he is referring me to the IU Medical Center. My appointment is on Dec. 29th. He thinks he would be better suited for further opinion regarding disease modifying therapies. I am currently on Copaxone 40 mg and have no issues taking the drug.
Thanks for your responses in advance.
My last MRI of brain and spine showed no enhanced lesions. My eyes aren't doing the shock thing today but, not for sure it won't appear again. And I have been doing much better since my last relapse from July this year, which affected my mobility and bladder. Would it be wise to take the Acthar Gel if I'm not having a true relapse? I'm so confused. What is your opinion? What would you do? (I know it won't be a professional one but, I'm curious as to what you think.)
My neurologist is not an MS specialist and he is referring me to the IU Medical Center. My appointment is on Dec. 29th. He thinks he would be better suited for further opinion regarding disease modifying therapies. I am currently on Copaxone 40 mg and have no issues taking the drug.
Thanks for your responses in advance.
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