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Hair Loss after 3 Years on Gilenya?

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    Hair Loss after 3 Years on Gilenya?

    I've been on Gilenya for 3 years, and I am now experiencing some unexplained hair loss. The hair I am losing is quite significant, and I definitely notice a difference in the volume of hair I now have. From the brief research I've done, it appears to be that most people experience some form of hair loss early on when starting Gilenya, but I haven't found anything about it developing so late into the treatment.
    I was wondering if anyone had any opinions in terms of it being related to Gilenya.

    #2
    I have been on it 5 years and no signs of even minor hair loss. I don't think it is even listed as a side effect but I have heard others complain about it. So not sure what to tell you about it being related.

    I was in the study and had to sign a big pile of consent forms and don't recall hair loss listed but I will try and dig them up and check. I will get back to you later today or tomorrow.
    Rise up this mornin, Smiled with the risin sun, Three little birds Pitch by my doorstep Singin sweet songs Of melodies pure and true, Sayin, (this is my message to you-ou-ou

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      #3
      Have you had your thyroid checked, MS1992?

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