I just got off the phone with my Neuro and my blood work results showed I tested positive for the JC Virus. Even as apprehensive as I was about taking Ty I was still excited after reading about all the good it has for so many people. My MS is progressing at such a pace I don't know what's next. I'm going to stay on Tecfidera for now and we will take it from there. Just not a good day in my world. In talking with my DW she reminded me of what I always say "Things always happen for a reason and happen for the best." It's in the Good Lords hands now and I have faith he will help me.
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Dx'd 4/1/11. First symptoms in 2001. Avonex 4/11, Copaxone 5/12, Tecfidera 4/13 Gilenya 4/14-10/14 Currently on no DMT's, Started Aubagio 9/21/15. Back on Avonex 10/15
It's hard to beat a person that never gives up.
Babe Ruth -
Waydwnsouth: I am sorry you are JCV pos. I worry about that more and more each time I am tested as I just came up on my 2 year reunion with Ty.
I am glad you are keeping it on the back burner. Its such a good drug, I hope it is made available to you in the future if you need it. At least for a couple of years when the risk is lower.
Take care
LisaDisabled RN with MS for 14 years
SPMS EDSS 7.5 Wheelchair (but a racing one)
Tysabri -
Waydwnsouth, I'm sorry to hear you tested positive for the JC virus. I feel your pain, I did as well and am no longer on TY.
I do agree with your mantra that everything happens for a reason.
Keep the faith,
DebbieComment
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That's too bad, but the majority are positive.
What level(number) positive are you? If it is low, like .15, it shouldn't be an issue.
Sorry, but I don't buy the "things happen for the best".
Things do happen, but you always have options of what is best for you.
I didn't get this rotten disease for any "reason". I just did.Comment
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Waydnsouth1, even tho you are jcv+ you still can choose to take Tysabri. What is your titer-if your Dr didn't tell you call and find out. I'm pretty sure that for the first 13 months on Ty there was only one case of pml.
You stated you are progressing and that you will stay on Tec. If it was me, I would want a med that slowed or, in my case, halted progression.
Good luckLinda
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I am with Linda. If the MS is progressing rapidly you can still stay on Tysabri. Things sometimes happen for a reason but we can make choices.Comment
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