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complication with my baclofen pump trial

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    complication with my baclofen pump trial

    hi all, i had my test run yesterday. the dr had to poke me twice. the 1st attempt, was stopped because he drew blood, and and the needle needed more pressure than he wanted to apply. he went one vertabra down and had no problem. all went well, and the pt said i had a good improvement. when i stood up, i felt a moderate improvement. about 8 hours after the injection, my legs started getting really weak. after 10 hours i couldnt move either leg or foot. this morning my right leg had returned to normal, but my other leg couldnt support my weight.

    any ideas?
    barry

    #2
    Hi Barry

    I hope things have returned to normal for you. I just got my 4th baclofen pump 2 weeks ago.

    Take Care, Bob

    Comment


      #3
      Originally posted by barryrado View Post
      hi all, i had my test run yesterday. the dr had to poke me twice. the 1st attempt, was stopped because he drew blood, and and the needle needed more pressure than he wanted to apply. he went one vertabra down and had no problem. all went well, and the pt said i had a good improvement. when i stood up, i felt a moderate improvement. about 8 hours after the injection, my legs started getting really weak. after 10 hours i couldnt move either leg or foot. this morning my right leg had returned to normal, but my other leg couldnt support my weight.

      any ideas?
      barry
      Hi Barry,

      So what's the update. Did you get the strength back in your other leg.

      If you have too much baclofen (I'd imagine orally, as well as intrathecal delivery) your legs can turn to noodles. We need some spasticity to stand if our legs are weak, as well as spastic.

      Maybe you had a delayed reaction to the baclofen. My bolus dose, during the test, gave me my legs back, i.e. I could hardly move them before the bolus of baclofen, but after the baclofen, I could move them.

      I have heard of other folks who have had their legs turn to mush during the test. Some others, who were wheelchair bound, had release from their spasticity and pain, but did not get the use of their legs back.

      I guess the question would be could they adjust the dose down low enough to strike a balance between walking and spasticity relief. What does your neuro or the Medtronic rep have to say about the leg weakness.

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