can anyone tell me how I'm going to feel or what to expect input would be appreciated.
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Sorry that I can't answer your questions specifically because I have no personal experience with rituxan. However, like most things, I believe the infusion will be less remarkable than the apprehension.
Rituximab ends in "mab" signifying it is a monoclonal anti-body. Other monoclonal antibodies (Tysabri which is natalizumab) usually take time, often a few weeks or couple of months to achieve real effectiveness. So be patient for results.
Rituxan has demonstrated outstanding effectiveness in MS along with excellent safety. There is a good chance you will experience no adverse side affects, at all.
I hope you will keep us posted with your experience so we can learn together. I firmly believe taking rituxan will be one of the best decisions you ever made relative to MS. It has potential to stabilize the disease equal to or better than Tysabri where 34% experience no evidence of disease activity.
Of course, neither Tysabri or rituxan is classified as a reparative therapy, however, you may see an improvement in walking over time, as many on Tysabri have.
I believe your infusions will provide nothing to fear. I am so optimistic for you!
Do let us know how it goes. You have my prayers for peace and I will pray for you tomorrow, too. Proverbs 8:12 talks about knowledge of witty inventions. Rituxan is one of them. Best! -
wow thank you for your prayers I really appreciate it so far it is very uneventful which is good I will keep everyone updated on how I am doing. You just gave me a boost thank youComment
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Really glad things are going well and hope/expect they will continue that way.
One of the interesting posters at the AAN meeting this year related to brain tissue stimulated as a result of physical exercise. If I can find it again I will post some of it.
IMO, one of the major benefits of Tysabri or rituxan is feeling better leads to wanting to do more, physically doing more, thereby creating new brain tissue, and possibly new nerve pathways. A positive cycle which you are just beginning, jnet.
My wife walks better today than she did 12 years ago when she started Tysabri. Truly, that is remarkable in MS.
Jnet, I believe that outcome is a very distinct possibility for you based on the similarity of Ty and rituxan as monoclonoal antibodies.
Question... how often will you get infusions of rituxan?
I am happy for you. You could have chosen nothing better, IMO. Eat well, exercise and you could see amazing results on rituxan, IMO. Best! TY so much for posting your experience, I'm sure it will help MSers.
Facing an unknown like you have is very courageous, so proud of you!Comment
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Myoak I will be having infusions every 6 months two weeks apart after the first one I felt a little week and a couple days later I felt a little nauseous but I am feeling strong and fine now this Thursday I will have my second infusion so keep me in your prayers and I'm glad your wife is doing very good.Comment
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Hope you last infusion went well. Give it some time... most meds take a while to build up. Thanks for staying in touch and do keep us posted about your experience. We all learn from those willing to share.
You are much appreciated!Comment
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