Has anyone taken Rituxan for SPMS? I would appreciate if anyone can share their experience with this treatment
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Not yet, but soon
I'm getting it in the next week or two. Neuro told me it didn't have huge side effects but I might feel tired for about a week or so after each infusion. Are you scheduled to take it, or are you just considering it?
I was given these stats, anecdotally but not the result of large-scale human MS studies (there aren't any):
--about 50% of patients see some positive effect, in varying degrees.
--it doesn't "turn back the clock," it just slows it down (as with other treatments on the market so far)
--it has no effect on spasticity -
now I've had the infusion
I didn't experience any side effects, apart from sleepiness due to the Benadryl they give you. Now I'm told that in about 6 weeks I'll be able to tell if it's helping. I'll report back.Comment
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my post just disappeared I just went to the doctor today about Rituxan for secondary progressive multiple sclerosis I will start in about 2 months we want to get out of my system let's stay in touch so we can see how each other is doing I will pray for you tooComment
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