Hey BG,
Hope you're doing well. Never read if your reduction in dosage helped your upper body strength. I was wondering if it gave you more ability with transfers?
I know you and I had our pumps implanted around the same time, and if I'm not mistaken, yours was one of those on the recall list, as is mine.
I had a pump refill last week, and the pump doc and I were talking about the "threat" that was outlined in the recall. I've had mine 3 years, and the recall seems to state that around 4 years there is a possibility of battery failure, which would be early next year for me.
My physiatrist is going to talk to the Medtronics rep...who is the answer lady, for sure. She is very informed.
But I came home and once again checked my serial number to make sure my pump is one of those recalled, and it is. So I started researching what the recall involved, and it looks to me that they don't automatically substitute a new pump for a recalled one at the 4 year mark, unless you get alarms from the pump, or notice increase in spasticity, etc. (i.e. they don't replace them "prophylactically"...that's the term they used.)
That sure makes sense to me, because I told my doctor, I wouldn't really be interested in replacing it just because it "might" fail...I already had that one redo because the catheter came out. However, I've read on pumpsters that some folks did have theirs replaced at the 4 year mark just to be sure...I'm 99% convinced that wouldn't be my choice.
Just wondering if you've heard any info from your pump doc.
P.S. Shout out to Bob...do you have any info, and am I reading the Medtronics recommendations correctly when it seems to say take a wait an see approach.
Hope you're doing well. Never read if your reduction in dosage helped your upper body strength. I was wondering if it gave you more ability with transfers?
I know you and I had our pumps implanted around the same time, and if I'm not mistaken, yours was one of those on the recall list, as is mine.
I had a pump refill last week, and the pump doc and I were talking about the "threat" that was outlined in the recall. I've had mine 3 years, and the recall seems to state that around 4 years there is a possibility of battery failure, which would be early next year for me.
My physiatrist is going to talk to the Medtronics rep...who is the answer lady, for sure. She is very informed.
But I came home and once again checked my serial number to make sure my pump is one of those recalled, and it is. So I started researching what the recall involved, and it looks to me that they don't automatically substitute a new pump for a recalled one at the 4 year mark, unless you get alarms from the pump, or notice increase in spasticity, etc. (i.e. they don't replace them "prophylactically"...that's the term they used.)
That sure makes sense to me, because I told my doctor, I wouldn't really be interested in replacing it just because it "might" fail...I already had that one redo because the catheter came out. However, I've read on pumpsters that some folks did have theirs replaced at the 4 year mark just to be sure...I'm 99% convinced that wouldn't be my choice.
Just wondering if you've heard any info from your pump doc.
P.S. Shout out to Bob...do you have any info, and am I reading the Medtronics recommendations correctly when it seems to say take a wait an see approach.
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