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    Agitation

    Had excaberation this past Friday that landed me in the ER. I blacked out, plain and simple.

    Very vague recollection of events of the night...recall being very, very agitated just prior to the 'event'. Headachy too. I recall coming out of the bathroom (an attempt to remove myself from being a ***** to family members and had intentions of readying for bed when...) and asking for help, felt discombulated from my body, my body felt like jelly and my 16 yr old said I used the wording I felt like I was drunk and unable to stand up or keep balance.

    Two of my kids and husband (this is now all heresay as I don't recall but some sensations or tiny bits of but other than this being retold to me, clueless) but I was sat in chair where my eyes rolled to the back of my head several times. My BP was taken and I was carried to the car and brought to the ER. There drs performed CTscn (I recall hearing the word bump and later hubby said I was being told the gurny was going over the door jamb), had EKG and lots of blood work. (all clear including LYME but still waiting on maleria -??).

    I recall being able to move my body from gurny onto bed for ctscn but it was as though I was above my body watching this, surreal... Long story short, by 1:30 am (this all began before 10pm at home) I was alert and coherent with very little memory of how I arrived to be in ER, etc. Given steriods and fluids and sent home with directive to contact a MS specialist, not just a neurologist.

    My inquiry right now....why do I feel so agitated? Why am I feeling, for lack of better word, so *****y. Also extremely exhausted (this was my very first MS marker back in '06 and I've learned to cope with my exhaustion and supplement with 200 mg of provigal as needed to get through a work day).

    There are other little symptoms going on...the swoosh, swoosh feeling (and sound) in my head, the heavy clumsy feelings. But the agitation is killing me and my family, they're trying to be empathatic but I have no tolerance or patience for them (this is not the first time I've had this type of sx but I'm feeling validated that I've been upgraded from "Demylenation Disease to there are the words, the actual words "MS Excacberation" on my discharge paperwork.

    Validation, yay. But any others get this feeling or should I attribute this to my thyroid or my menopause (on HRTs)? Just plain sucks to be around me... I hope I didn't crowd my sentences either. I'm working very hard at trying to spell correctly and word my sentences so they make sense because they are not coming off my fingers that way today (brain, meet fingers and learn to work together please!)
    Joy
    Mom of 3 / Demylenation Disease since '06
    I don't want MS...I do want validation
    ...I am not crazy...


    #2
    Thankfully your ED staff was competent and didn't just inject you with ativan and admit you to the psychiatric unit.

    Did you take the provigil that day? I know this isn't as hard core as some of the stimulant medications but OD on them can cause agitation, mania and/or psychosis.

    Its not always a matter of taking too much often times it is a matter of the person's body not clearing them effectively, being dehydrated or not sleeping.
    He is your friend, your partner, your defender, your dog. You are his life, his love, his leader. He will be yours, faithful and true to the last beat of his heart. You owe it to him to be worthy of such devotion.
    Anonymous

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      #3
      did not, only take the provigil when I absolutely need to, ie work all day then bring kids to various afterschool/evening events and even then, I've learned to cope so as not to take it. I work in a school and only work summer school 4 hrs a day for 4 weeks 4 days a week....that ended last week.

      The only thing I took that day that wasn't my normal routine meds (synthroid, estradiol, progesterone, etc that I've been on this routine for well over 2 yrs) was a xanax to help me curb the in my throat anxiety and agitaiton.
      Joy
      Mom of 3 / Demylenation Disease since '06
      I don't want MS...I do want validation
      ...I am not crazy...

      Comment


        #4
        You said you were given steroids. Was it just once in the hospital? Or was it a 3 or 5 day series of IV steroids? Are you on an oral taper of steroids?

        Certainly your crabbiness could be a side effect of the steroids you were given. Steroids are well known for causing agitation and mood swings. Even medical corticosteroids are know for causing "'roid rage". Some people go psychotic on steroids and have to be hospitalized for that.

        If your agitation is from the steroids it should calm down in a few days or a week or so after you finish your steroids if you are on a taper. Your neurologist or even your primary doctor can prescribe something to help you stay calm until things settle down.

        Some of the other effects you are having could also be side effects of the steroids. I sometimes get slow witted and addle brained from my steroids. I sometimes get the woosh woosh in the head and dizziness from them too. If any of the effects are from the steroids they'll go away in a few days or a week or so after you are off the steroids.

        Menopause IS known for making women crabby but it isn't known for making us pass out and have no memory of the surrounding events. It's a good idea to have your hormones checked even though you are on HRT.

        When those kinds of events happen medications are always a suspect as is poisoning of some kind. Hopefully the ER covered all of that as best it could. Of course stroke and seizure are suspects too.

        And MS is a suspect. If you have lesions in the right places they could have caused your blackout, your lack of memory and even your crabbiness.

        You'll know more when an MS specialist evaluates you. In the meantime you can ask your neuro or PCP for a prescription to help calm your agitation. I hope you feel better soon.

        Comment


          #5
          one time shot, in the ER, of the steriod. Well verses in steriods as hubby is a kidney transplant patient. And...well the agitation started prior to the ER visit. Tomorrow will be one week of the agitated feeling. GP of no help. My husband got me in to see him Thursday after work b/c I wasn't, well I wasn't right. I'm also bruising very easily and this has been translated into thinning skin (I'm 47).

          I was just wondering if the agitation is somehow linked to anything else. I've sworn off fighting for the MS dx for a few years now, especially after being told I was crazy by a local GYN in 2011 .... this after telling me I had ovarian cancer (not true, it was endometriosis and I ended up in surgery 2 weeks later but that's another story. My day is worsening by the hour. I can't snap out of it.

          I was first like this after my hysterectomy...I tried to stay off HRT b/c of the endometriosis but found I was hating everyone, absolutely zero patience and snapping heads off like ends of a greenbean. I'm isolated today so I don't continue to alienate my family.

          This is not related to any of the meds given in the ER or that I take. Drs have no idea so I thought I'd throw it out here and see what everyone here thinks. And your inputs are appreciated, they are. =(
          Joy
          Mom of 3 / Demylenation Disease since '06
          I don't want MS...I do want validation
          ...I am not crazy...

          Comment


            #6
            Joyagirl,

            My suggestion is to really review your medications, especially the hormones. Those can easily throw you a doozy!

            I am in menopause and take the vivelle dot patch to stabilize the symptoms from my hormone fluctuations. (I am 51 yrs old.). Anyhow,every three months I take 10-14 days of progesterone. Typically it had been the branded prometrium. But then the generic came out and my pharmacy sent me the generic. Without giving that a thought I took the generic. I was about a week into the dose I started have huge anger and agitation...so much so that I thought I could get in my car and just drive off and leave my family!!! I couldn't believe that I was feeling this way for no reason, but I was a mess!

            I sat down and went through my meds in detail and that was the only change. Of course I called the pharmacy and they said that the generic is the same and it couldn't be the progesterone. Well, I decided to immediately stop and sure enough I was completely back to normal within a day or so.

            Of course, the docs don't believe me, but I will NEVER take generic prometrium again because I know that it isn't the same. I will go off the patch and live with menopause symptoms before I ever go through that nightmare again!

            So my suggestion is to really go through your medications in detail, especially if there had been any changes at all and look closely at the hormones!

            Hang in there....wish I could provide you more encouragement....

            Comment


              #7
              Thanks all. Nothing in meds has changed in well over year, well except today is day 3 of doxycycline, you know, in case it's Lyme not MS.

              I am wondering if there isn't more going on with me, say viral? I'm sleeping alot, which is normal, that's one of my foremost markers, the fatigue but I'd been running low grade temp for almost 2 weeks and today its up to 99.0 (my normal is 96 and has been since forever).
              I have a follow up with my GP from last Thursday's visit, tomorrow morning.

              I already know the bloodwork up, when I went to interview a new (former) GP she gave me the goods. My BUN and Creatinines are high (one kidney-donated mine to hubby in '04). so I wonder if my general not feeling well has, well I know it has, silly me, added to my agitation, grumpyness and just leave me alone feelings. Thanks for all the input.

              I did receive in today's mail both the questionaire for the MS center that I will visit in September and the test results / dr notes from last Friday's ER visit...funny (ready to laugh) I don't recall much of that night at all, I was OUT of it completely but the report has me answering questions and noted as 'alert'...boy oh boy I had to laugh because I have absolutely NO recollection! gotta love our local ER.

              Hope you had a chuckle, I like when people smile.
              Joy
              Mom of 3 / Demylenation Disease since '06
              I don't want MS...I do want validation
              ...I am not crazy...

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