Announcement

Collapse
No announcement yet.

Im new and have questions

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    Im new and have questions

    Hi there
    when I was diagnosed in the summer of 2010 I had 5 lesions on my brain. Is that alot? I have been with out any MS meds since Dec.2011. Do I have more lesions now?
    Do lesions ever go away? I have quite a few different mental and emotional issues but haven't experienced very many physical problems due to the MS. I have noticed that I get really hot easily and sweat extremely bad. I have never sweated like this before I was diagnosed. Is this because of the MS? Since I haven't had many physical problems does this mean that I most likely wont have any problems later on? what is my chances of being disabled? Currently I am over 100 pounds over weight. Is that goin to be a huge factor in this? What are the chances of having to use a wheel chair?
    Any information on these questions would be greatly appreciated. Thank you.

    As long as one heart still holds on
    Then hope is never really gone

    #2
    Mrs.MS: Welcome to MS World! To start, I am surprised you are not on a controller medication at this point in your MS. However, this is a personal choice. I will try to answer some of your questions.

    1. I have 5 lesions on my brain, is that a lot? 5 lesions are not a lot relatively, but in MS it is not the amount of lesions you have, it is the location of the lesions. Some places are worse to have lesions than others. For example: The brainstem is a bad place to collect lesions.

    2. I have been with out any MS meds since Dec.2011. Do I have more lesions now? There is no way to tell this without an MRI. Have you had a recent MRI in 2012? It would probably be a good idea to get one to check and see if you have more lesions to see if you need to start medications.

    3. Do lesions ever go away? Lesions do go away, they leave something called a black whole. You can see it as a black whole on the MRI. You can still have symptoms from black wholes. Usually they are permanent symptoms that the lesion left behind.

    4. I have never sweated like this before I was diagnosed. Is this because of the MS? Probably not. This may be due to your weight. Increased sweating is not a normal symptom of MS.

    5. Since I haven't had many physical problems does this mean that I most likely wont have any problems later on?
    No. MS is a degenerative disease, which means it slowly over time causes disability. You may have a mild case. For your sake I hope so, but this is a case for you to be on a DMD to even further lengthen your time from ability to disability. They are designed to do that, and each do it to varying degrees.

    6. what is my chances of being disabled? That depends on the course of your disease and nobody really knows that. That is why most of us have MRIs once per year to check the progression of our MS (look for new lesions that we don't feel), and make new decisions about our DMDs (disease modifying drugs).

    7. Currently I am over 100 pounds over weight. Is that going to be a huge factor in this? The healthier you are otherwise, the better off you will be. It will be better for your walking in the long run if you loose the weight. This is something you could tackle now while you have few physical symptoms.

    8. What are the chances of having to use a wheel chair? Everyone wants to know this. Nobody knows for sure. MS is very unpredictable. You can wake up one morning and be paralyzed. Its just one of those things we all live with. For now, use your legs to exercise, and get as healthy as possible.

    9. Mental and emotional problems are very prominent in MS. You are not alone. I am sorry Dr's blew you off about the bipolar thing. You may need to see a good psychiatrist to get some answers. That needs to be treated so you will feel better. Mental illness in MS is no easier than physical.
    I hope you get some needed help.

    I hope things get better for you soon! Please go to the NMSS website and check out all of the medications used for MS, or look here on our website at the different ones used and think about starting again.

    Take care
    Lisa
    Moderation Team



    4.
    3.
    Disabled RN with MS for 14 years
    SPMS EDSS 7.5 Wheelchair (but a racing one)
    Tysabri

    Comment


      #3
      thanks

      thank you so much for taking the time an responding to me. that was very helpful info.

      As long as one heart still holds on
      Then hope is never really gone

      Comment


        #4
        I agree.
        Lisa is very good.
        Thank you, Lisa!
        We appreciate you and so many others.

        Comment

        Working...
        X