I started having symptoms 3/31/13 with vision loss in my left eye only that lasted about 20 minutes, dizziness, lightheadedness, and overall weakness and fatigue. The next day I continued to have dizziness that comes and goes, along with extreme fatigue and left arm pain/weakness.
I have had only one MRI (just a general one ordered by my primary care dr.) of my brain and it was almost a week after it all began. The MRI showed two 'white matter flares' or 'flares of hyper intensity' depending on which dr I spoke to. (Neuro said they were within the region they see for MS patients, but that didn't mean I had MS.)
These symptoms were pretty bad for two weeks, then got better, as in, not as bad. I still was having dizziness, it was just not as severe. My left arm was so weak for those two weeks I had a hard time writing at all (I am a lefty) or even picking up my purse.
It took a few weeks, but once I finally saw the neuro for the first time he asked me a lot of questions and ordered a lot of things for me to have done, including opthalmalogist (no evidence of ON 4 weeks after vision loss), cardiologist (they found I have a PFO that is apparently unrelated), VEP (normal), balance institute testing (it is coming from within my CNS), and I just had a LP done and apparently e
verything came back from that as normal, just found that out today.
I haven't had a single day since this all started that I have felt normal. I have dizziness that comes and goes everyday. I now have lots of pain & twitching all over, sometimes tingling. I have a hard time focusing on things and my memory is crap.
The dr talked to my husband today and basially told hubby that we could 'cross two big things off our list', meaning I DON'T have cancer and I DON'T have MS. I am a bit confused, since I know it is possible to have a negative LP and still have MS. I have to call tomorrow to schedule a follow up with neuro, but I feel like he is going to tell me He doesn't know what is wrong and leave it at that. Also, I have not had an MRI with contrast, or of my spine. Should I ask, or request to have this done?
I just have had so much done and no one can help me or do anything for me because no one knows what is wrong. I just want some answers.
** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print. **
I have had only one MRI (just a general one ordered by my primary care dr.) of my brain and it was almost a week after it all began. The MRI showed two 'white matter flares' or 'flares of hyper intensity' depending on which dr I spoke to. (Neuro said they were within the region they see for MS patients, but that didn't mean I had MS.)
These symptoms were pretty bad for two weeks, then got better, as in, not as bad. I still was having dizziness, it was just not as severe. My left arm was so weak for those two weeks I had a hard time writing at all (I am a lefty) or even picking up my purse.
It took a few weeks, but once I finally saw the neuro for the first time he asked me a lot of questions and ordered a lot of things for me to have done, including opthalmalogist (no evidence of ON 4 weeks after vision loss), cardiologist (they found I have a PFO that is apparently unrelated), VEP (normal), balance institute testing (it is coming from within my CNS), and I just had a LP done and apparently e
verything came back from that as normal, just found that out today.
I haven't had a single day since this all started that I have felt normal. I have dizziness that comes and goes everyday. I now have lots of pain & twitching all over, sometimes tingling. I have a hard time focusing on things and my memory is crap.
The dr talked to my husband today and basially told hubby that we could 'cross two big things off our list', meaning I DON'T have cancer and I DON'T have MS. I am a bit confused, since I know it is possible to have a negative LP and still have MS. I have to call tomorrow to schedule a follow up with neuro, but I feel like he is going to tell me He doesn't know what is wrong and leave it at that. Also, I have not had an MRI with contrast, or of my spine. Should I ask, or request to have this done?
I just have had so much done and no one can help me or do anything for me because no one knows what is wrong. I just want some answers.
** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print. **
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