My 3 month neuro check up

[lstrl]

Last week I went to see my neuro after 3 months since my last appt. The last time I saw him, we discussed me trying to exercise to help maintain the strength I still had left. My walking at that time had improved but still wasn't great. So I go into his office this time and he does a few neuro checks and then discusses with me the oral meds that he doesn't prescribe to his patients and where I could go if I want them. Is he trying to get rid of me? Just FYI, I'm doing very well on Avonex and not having any side effects, so there's no reason at this time for me to think about changing.

Then after his long speech about that, he asks me if I have any questions. That's it! Not once did he ask me how I was doing or if anything has improved or gotten worse. So to this day he has no idea that I've gotten a lot better but still not where I want to be. He has no idea I'm exercising most or all days of the week and have gotten stronger doing that. He also has no idea of the horrible tingling I'm now getting in my right hand that's off and on, and I wasn't going to offer up the info. If he doesn't care, why should I? I've already lived with this for 2 1/2 years without any help from the drs I saw about it, so I guess why should now be any different?

It's no wonder my medical records are so horrible. The only thing he knows about me is what my old neuro said, and he messed that up too. What kind of dr sees a patient and doesn't even get a history from them? As soon as I can find a job and get new insurance, that quack is history. Ok, my rant is over.

[22cyclist]

HA! I had a neurologist like that before I have the one I have now...got rid of them too...asap. There are good neuros our there, they are a bit hard to find because it seems like most of them are either insane themselves, or just don't care, but some are genuinely caring and wonderful. I have a half-caring doc. She is a researcher, so she is mostly into that, but she still cares. She has over 1K patients, so she never remembers your name, but once you remind her who you are and why you are there, she is pretty empathetic. At least she asks how you are doing and how you have been! Good Grief!

Look around for another MS specialist if possible. You should be able to complain about your tingling even if there is nothing that can be done about it.

I hope you get a new one soon, you get an idea of where you are in terms of your disease, and you start to feel better understood, and better in general Istrl.

Take care
Lisa
Moderation Team

[mjan]

Sorry you went through all this. I wonder if your neuro is a general neuro and not an MS specialist. The reason I ask is because the gen neuro I saw (after I lost my MS DX) suspected MS again. But he knew he was not a specialist to prescribe the medications needed and how to monitor them. It is simply out of the scope of his practice so it is ethical that he refer you out..if.. that is true in your case.

Hope you find someone who specializes and takes time with you. At least he got you diagnosed, right? Not saying he conducted this transfer in the best way..

Let us know what happens.

Jan