New to this site

[PositiveMS]

Hi,

I finally decided to join one of these sites. I'm 33, have RRMS, and have had it since I was 18. I made it all the way to 30 and a half before I started to notice difficulty walking. Now I use a cane for balance and also because my legs sometimes have a mind of their own, but it has only been for 4 months. I strongly believe that a positive attitude and healthy eating make a huge difference. I also have a deep belief that there will be a cure or at least an excellent new drug soon. In the meantime, life is still excellent, just full of daily challenges that people without MS wouldn't understand, like carrying groceries, trying to go to social events, and the biggest one, for me at least, dealing with stairs. I never disliked stairs before, and I remember running up and down them even a few years ago. I also remember paying ultimate Frisbee up to 3 years ago. But like I said, no time to wallow! Life is different now, but I have really gotten to see the good and helpful side of many people, which in itself is a great thing. I hope there are lots of you out there who believe that something good is on the way to help us!

[PositiveMS]

A little help needed

I am looking for some help though. The one thing I don't like is the feeling of anger I sometimes get when others speak as though they are experts on MS. I feel like saying, " Unless you yourself have had to deal with this, you don't really know what you're talking about."

[Seasha]

Welcome to MSWorld, PositiveMS! Glad you found our helpful and informative place to share, vent, ask questions and find friends~

Sounds like you have a pretty good attitude about it all. As far as your anger here about others comments, we all know and understand that one. I've lived with MS for 24 years now and still get unbelievable comments and suggestions! But, I've learned to let it slide. Sometimes well-intentioned people just need some education. If they are willing to listen, here's you chance to educate them and give them good accurate information. The NMSS has lots of information and pamphets.

In the meantime, here's a link that has been passed along for some time now. A more humorous look at what its like http://www.howdoesmsfeel.com/how.html

Again, welcome and hope to hear more from you!

[tracibk]

Hi! I am 37 yrs old dx in 2002. I enjoy reading peoples' posts because it reminds me that I am not alone with what ms has taken from me and that they have the same feelings I do. I remember being able to run up and down stairs.....just run in general. I used to run(okay, jog) on my treadmill.....which I hated.....because I could. I knew someday that might not be possible. I let myself cry......always feel better after a good cry. Are you taking a dmd. I just recently started Tecfidera...was on Rebif before that.

[PositiveMS]

Hi!

I never tried a treadmill, even when I could, lol. I did love playing ultimate Frisbee until about 3 years ago. I know I am supposed to accept this might be the end of my running, but my brain refuses to give up hope. I started Copaxone 8 months ago. Before that I never was on anything. I think it is keeping things in check for now, but I am positively salivating at the thought of trying Tecfidera! I just need it to be covered by drug plans in Canada, but that is coming soon. Something tells me it will make a huge difference. I hope it does for you