Announcement

Collapse
No announcement yet.

A bit about me...

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    A bit about me...

    i started coming in here about a month ago. Someone mentioned that I should come in here and put a few words about myself so here goes...

    My name is Christine Rutherford and I live in Spruce Grove Canada. I was diagnosed with MS 13 years ago at the age of 25. I really didn't think too much about it at the time. My neuro told me I should started taking Copaxone, so I did. I was a very busy and motivated person just entering my career as a teacher so I didnt think this would effect me other than the inconvenience of having to take a needle every day. I decided a few months after receiving the news to move to Asia to teach English. That started a three year adventure that I would not change for the world as I met some wonderful friends that I keep in touch with to this day. I then moved back to Canada and began working as a special needs teacher. Eventually I moved in to counseling and became an Assistant Principal.

    All of that changed three years ago when I began having very atypical reactions to the Copaxone and was put on Rebif. Since that time, I had my first and then two more relapses that were very difficult to get through. I have considerable weekness and constant numbness in my right foot and leg and considerable cognitive issues. I continued to work until two months ago when my neuro said that I had eight new active lesions on my MRI. He switched me back to Copaxone to see if being off it for three years will allow me to tolerate it again. He also told me to take a year off work to try to stabilize and get this under control. Then started the grieving process.

    I had never thought of myself as disabled and refused to allow even my husband and family to help me with things I felt I should be able to do on my own. Now I accept help and appreciate it. I ride an adult tricycle due to balance issues and use a cane to walk long distances. I am careful of heat and try to limit stress as much as I can. I had a very dark time for a couple of weeks trying to wrap my head around all of this, but now I am at peace with it and at times really appreciate having MS as it as allowed me to take a break and realize what is truly important in my life; my amazingly supportive husband and my fabulous family and friends who have helped me through everything so graciously and without me having to ask.

    Overall, I am a content person who at times does feel the "why me?" feelings pop up, but I just look at it as another adventure to overcome in my life.

    Thanks so much for reading.

    Krystine
    Diagnosed 2000 RRMS. Copaxone 2000 - 2010 Rebif 2010 - 2013 Copaxone 2013 - 2014 Tecfidera October 2014
    "You can't appreciate the good days without the bad ones."

    #2
    Welcome Krystine! In a couple of months it will be my 10th year with MS. I was a nurse and worked as long as my mind and body would let me...mostly my cognitive issues. I also ride a bike, a tandem with my husband now. Balance is his responsibility now.

    I can understand the grief. I still get that. It passes and then some days I am just plain angry. I think it is normal. Most days I am happy and just deal with whatever comes my way.

    I started like you on Copaxone, but it stopped working for me after a few years. They switched my to Rebif and I had a weird reaction, bone marrow failure. So they said no more interferons. So I am now on Tysabri. I love it, I haven't had many exacerbations on it, and no new lesions!
    I am JCV- so far, so I am lucky.

    Glad you stopped by. Keep asking and answering questions everywhere on the boards now that you have started!

    Take care
    Lisa
    Disabled RN with MS for 14 years
    SPMS EDSS 7.5 Wheelchair (but a racing one)
    Tysabri

    Comment


      #3
      Hi and welcome! I am 37 and was dx 11 years ago. I was a teacher but stopped when I had my girls. I always thought I would go back to teaching but that will never happen. The last several years have been rough. My body doesn't let me do too much if I stand or walk too much. My emotions are all over the place. I try to focus on what I can do instead of mourning all the things I have lost but it is very hard! I cry at the drop of a hat. I just started Tecfidera in the hopes it will slow things down.
      dx 2002 rebif 2002-2013 Tecfidera 2013

      Comment


        #4
        NICE TO MEET YOU

        I KNOW, THINGS CAN BE REALLY TOUGH. I HAD A HUGE MELT DOWN LAST SPRING AND THEY THOUGHT I WAS LOSING IT! PUT ME ON A TON OF MEDS AND NOTHING WORKED AND THEN THEY FOUND OUT I HAD A HUGE LESION IN MY FRONTAL LOBE WHICH WAS PROBABLY CAUSING THE EMOTIONAL ROLLER COASTER. WHO KNOWS? COULD BE HAVING MS, THE MEDS OR THE LESION. EITHER WAY, I STOPPED ALL MEDS EXCEPT A VERY SMALL DOSE OF EFFEXOR AND I WENT BACK ON COPAXONE BECAUSE MY NEURO COULD BE CAUSING ME ANXIETY AS WELL. I AM DOING MUCH BETTER NOW. STILL REALLY WOBBLY BUT MAYBE THAT IS ME NOW!

        IF YOU EVER WANT TO CHAT, LET ME KNOW. IT SEEMS WE HAVE QUITE A BIT IN COMMON.

        CHRISTINE
        Diagnosed 2000 RRMS. Copaxone 2000 - 2010 Rebif 2010 - 2013 Copaxone 2013 - 2014 Tecfidera October 2014
        "You can't appreciate the good days without the bad ones."

        Comment


          #5
          Hi Krystine

          Welcome! I enjoyed reading your story and marvel at your ability to write it! I hope you will come often and use your experience and expertise to respond to others.

          Take care
          Susan......... Beta Babe since 1994....I did improve "What you see depends on where you're standing" from American Prayer by Dave Stewart

          Comment


            #6
            glad you "found us", Christine.

            Know that this place can be very "empowering".
            Live simply. Love generously. Care deeply. Speak kindly.

            Comment


              #7
              Hi and welcome Christine

              Comment


                #8
                I love that you refer to MS as an adventure. I feel this too most of the time. It seems easier to accept MS and all that goes with it if you see it as a challenge that can be overcome, rather than just a bad thing that happened to you. It's an empowering state of mind. I still get the occasional "Why me" state of mind, and I've only been using a cane for about 5 months (I'm in my early 30s and should not need one!) But if I turn it into an adventure in my head, it makes me smile.

                Comment

                Working...
                X