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    Mixed emotions

    Hello all, I'm new here. I haven't been diagnoses with MS yet although everything else so far has been eliminated. I am 26, married, have two little girls under the age of 5, work full time and I'm going to school to get my bachelors in business (should be graduating this coming fall/spring).
    The word MS showed up on 11/12/12 on my MRI results after I had loss of sensation in my right side starting on halloween this year. I still don't know what to think about the whole thing. Part of me says be positive, be strong, do what needs to be done to keep this from being disabling as long as I can. Another part is telling me "what's the point", I'm battle to keep this one at bay. It is hard because I was so active and since I strain/sprained my low back last spring I haven't worked out or played volleyball (Volleyball is a passion for me, I played in college for PE's and on a city league). I don't want to accept that I can't do thing that I used to since I'm only 26. Most of the time I can't lift my 1 1/2 year old out of her high chair or crib.

    I'm done ranting now, luckily my parent, grandparents, my husbands family and my husband are supportive. They just don't know what to say to me when I talk about symptoms I'm having.

    Thanks

    Brandy

    #2
    I understand the mixed emotions Brandy. You've come to the right place. Feel free to come here any time. Lot of good people who will understand what you are going through. Be well Dale
    Dale in NC, dx'ed 2000, now SPMS

    Comment


      #3
      Brandy,
      I read your posting.
      Keep the Faith. You have much to Live for...
      as I do, (my children & 2 grandchildren)
      Do what you must do.
      Be flexible, bend, or you will struggle.
      I am 65 and was diagnosed...my 14 shot tom'w - Avonex.
      I am still walking...Best of Luck.

      Jordan

      [/U]
      Originally posted by Brandyml View Post
      Hello all, I'm new here. I haven't been diagnoses with MS yet although everything else so far has been eliminated. I am 26, married, have two little girls under the age of 5, work full time and I'm going to school to get my bachelors in business (should be graduating this coming fall/spring).
      The word MS showed up on 11/12/12 on my MRI results after I had loss of sensation in my right side starting on halloween this year. I still don't know what to think about the whole thing. Part of me says be positive, be strong, do what needs to be done to keep this from being disabling as long as I can. Another part is telling me "what's the point", I'm battle to keep this one at bay. It is hard because I was so active and since I strain/sprained my low back last spring I haven't worked out or played volleyball (Volleyball is a passion for me, I played in college for PE's and on a city league). I don't want to accept that I can't do thing that I used to since I'm only 26. Most of the time I can't lift my 1 1/2 year old out of her high chair or crib.

      I'm done ranting now, luckily my parent, grandparents, my husbands family and my husband are supportive. They just don't know what to say to me when I talk about symptoms I'm having.

      Thanks

      Brandy

      Comment


        #4
        Hi Brandy,

        Keep your chin up...you don't know it's MS yet, but even if it is, let me tell you what I've done since I was diagnosed at age 27.

        Got a bachelor's degree, and a Master's degree
        Marrried, had two children, divorced, married, divorced again (I know, I know)
        Work full-time (while going through school too!)
        Play sports and exercise regularly
        Play outside with my kids
        Handle two teenagers!!

        Not every day is a wonderful day, but can't everyone say that? The good news is that we live in the year 2013 and there are GREAT medications now to treat both symptoms and stall the progression.

        Good luck! I hope you stick around
        Do you need or enjoy fear, worries and restlessness? If you don't, then why do you keep inviting them into your mind?

        Comment


          #5
          Understand

          Reading your post it sounds a bit like me. I was diagnosed about a month ago. Although I have a loving family I feel alone. What about tomorrow right? I hope it's not MS but if it is we need to get our strength and hope from others who have been through it longer.

          Comment


            #6
            Moving forward

            Well, thank you all for the information and the hope.

            I just got my results from my lumbar puncture and was told (haven't had the office visit yet, just over the phone) that I have inflammation in my central nervous system. Have any of you had a lumbar puncture and if so do you remember what your results were? I'm just trying to get an idea of what to expect when I do see her on Monday. Of course I'm going to do some research, but its always helpful to hear from people that have had similar results.

            After my initial post I think I have either become numb or have decided that I will deal with whatever comes up when it comes up. After I completely recover from the IV solu-medrol, I plan to start going back to the gym to start gaining some of the strength I feel like I have lost.

            I feel more optimistic and just flickers of doubt. This site has been helpful in that regard!

            Thanks

            Brandy

            Comment


              #7
              Hey Brandy, how's it going? It took the docs four days to get back with my lumbar puncture results; If I remember correctly, the doctor told me I had "right IgG" and I think that's a measure of white blood cells, the ones that attacks invaders. I don't remember him saying anything about inflammation, but I don't really remember...it was like 15 years ago!

              Best wishes to you... <3
              Do you need or enjoy fear, worries and restlessness? If you don't, then why do you keep inviting them into your mind?

              Comment


                #8
                sorry for the delay

                The neurologist just simplified everything by telling me that the LP showed inflammation, and after having the solu-medrol there shouldn't have been any inflammation. I was dx with MS 1/14/13. I saw how so many people stayed in limbo for so long and my dx went so quickly that I doubted that it was the right dx.

                When I tell family or friends about my dx they don't believe me and often say, "Isn't MS disabling?, You don't look sick or disabled..." I honestly think that is the hardest to deal with, explaining my self and how each person with MS is different.

                It has been hard to adjust to!

                Comment

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