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    Hi everyone!!!:)

    Hey, Im 31yrs old married with 2 children. 2 months ago I went to the ER with left face paralysis. Thought it was a stroke cause it runs in my family. The neuro on call had me in for a mri within 3hrs and told me it was MS, done spine tap ,all came bad positive except myelin sheath test. Got excited for awhile thinking they were wrong but unfortnately not. Found 3 small lesions on left side of brain and one large on right side(2cm x 1.8cm)from researching myself they call this a tumefactive lesion.. Ive never had any symptoms to do with ms up til my face paralysis.

    Went to my first neurologist appointment 4wks ago and my dr says its my 1st attack but still wants to start me on treatment right away and to put me on gilenya. Was in the middle of my pretesting ,got a tooth infection and a week ago suffered another attack,this time my left leg weakness and foot drop.The large lesion was enhancing again,my neurologist said it was unusual for this to happen. never really got a full explanation on this yet from her. I know its all new to me and its gonna take awhile for me to understand..

    I got a call from the infusion nurse yesterday saying that they were discussing my treatment and now want to put me on tysabri,confused why they want to change it, are they keeping something from me!!scared me reading up about the side effects. Was talking to my mum on the phone this eve and she says they call tysabri in ireland the miracle drug..
    Im looking forward to learning from everyone and hearing about your experiences.

    #2
    Hello missirish21

    Welcome, glad you found us. I can't give you advice on either of those meds since I've been on Betaseron for 18 years the first medication available.

    This disease does not follow any known rules so there is no real way to predict how it will effect you. Eating healthy, maintaining your weight and staying positive and as stress free as possible are the best way to 'off set' this MonSter.

    Take care
    Susan......... Beta Babe since 1994....I did improve "What you see depends on where you're standing" from American Prayer by Dave Stewart

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      #3
      tumefactive lesion

      Hi, Welcome but I sure wish it was for some other reason. I have also had a tumefactive lesion but they also called mine a baloconcentric lesion and it was also very large. 2.2 by 2.2 by 1.8 centimeters. I was put on a solumedrol infusion right away at 1 gram a day for 5 days. At my last check it had stopped and was fading out thank God. I have had another flare since then but this time the lesions were milimeters not centimeters more normal for M.S. so I had more steroids for 3 days at 1 gram a day again. I have posted for responses on these large lesions but did not get much feedback. They are real rare so there are not as many people with them. I am not a Dr. but I know the literature on them says to treat with steroids. I really hope they get things under control for you real soon. Make sure you let us know how things are going.
      PEACE
      Tortis

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        #4
        Hi Missirish

        Glad to have you here. I've been on Tysabri for 5+ years and it worked well for me. Stabilized my disease activity. It's good to get a timely dx so you can start treatment. Take good care of your self with excersize and diet as well. Be well Dale
        Dale in NC, dx'ed 2000, now SPMS

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