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    Recently dx

    Hello all...my journey all started end of July..numbness on left head/jaw and right arm/leg...one week and then all my symptoms disappeared. My PCP treated my initially and said if things didn't get better he would almost think is was MS because of the wierdness of it. Well needless to say since things cleared up I thought no more of it.

    Then mid-August came..woke up with no strength or control of the entire left arm and numbness/tingling of the right arm/leg again...back to my PCP..MRI...neurologists..testing, testing testing. Officially dx'd end of September started Copaxone mid-October...flair up last week--only right hand..unable to use...steriods...now things are starting to be back to the "new normal".

    I know MS is not going to ever go away but I guess I am wondering if I will ever possibly get the sensation back in my fingertips? I know I am new to this and PATIENCE is the name of the game some days. I guess I am needing some possible hope that I can do my needle point work again some day possible because as of this time I can't do this and it is rather frustrating but I am learning to adapt.

    I would just to know how much of abilities come back if at all after a flair up. It is just hard as there is no "support" program in my area and would just like to be able to ask real life questions and get real life answers.

    I know people with MS and my husband is very supportive but I really think more "scared" of what could be.

    #2
    There is hope!

    I was dx'd in 2007 after losing sensation, but having pins and needles in my fingers, arms, whole right side basically. I was an armament electricican and was discharged but let me tell you, the lack of sensation can come and go. I find myself being able to do some things some days and others there is no capability. learn to think of the good days and don't dwell on the bad days.

    Comment


      #3
      Welcome! Sorry for the reason you are here. Sometimes people have residual lack of feeling or residual symptoms after an attack. This is due to the lesion that you got (the new one), or an old one that was lit up, and is now scarred to the point of causing chronic symptoms.

      That said, sometimes these symptoms will stay, sometimes they will stay a while and then one day they will just go away, only to return one day again. Hard to say. For example I have chronic dizziness from a pontine lesion that is just hanging around from an exacerbation from last year. Some people say they had this for 8 years or so and one day it just went away. It just depends on your MS. Everyones is different. So, you may wake up one day and suddenly have feeling in your fingers again.

      Since the IVSM didn't fix it, or I should say relieve it, it may hang out a while. Your scar, or lesion is causing that nerve to short out, therefore no feeling. With any luck the Copaxone will help, and you will not get more.

      I am glad you came by. Hope you are feeling better soon!
      Lisa
      Disabled RN with MS for 14 years
      SPMS EDSS 7.5 Wheelchair (but a racing one)
      Tysabri

      Comment


        #4
        Hi ARR,
        Sorry about the diagnosis of MS. A short speculative answer to your question of will you get better is yes, it is likely that you will. Why? Because your brain will likely do a work- around to restore lost function by using its reserve capacity. No guarantees, but IHMO, it is probable.

        An important point to grasp is if you do recover the function you previously enjoyed realize it is important to stay on treatment even if you believe you have fully recovered from this flare-up. Keeping doing the things which give you the best opportunity for good health… don’t work until you are exhausted, don’t overheat, and do the healthy common sense things you know to do.

        If your current neurologist is not an MS specialist you might want to try locating a clinic which specializes in MS (the closer, the better). They will be up to date with the latest developments and meds. A new oral med (Aubagio) came out a few weeks ago and another oral med (BG-12) will probably come out this spring. Both have good safety profiles and are effective.

        Of course, there are alternatives to meds. Some people have good results through special diets. ARR, you have probably already begun educating yourself about MS and various treatments. It takes time. You will have success. God bless you and give you wisdom. Peace to you.

        Comment


          #5
          Hello Arr!

          Very sorry to hear about why you're here, but I am glad you've found this site. It is a great place to come for info, comfort, or just to vent.

          I can't offer any advice. Like you, I'm newly diagnosed and it's downright scary, especially when you're having a relapse (or "episode" if you prefer). Not knowing if, or when, you will recover your previous health and abilities is very frustrating and more than a little terrifying.

          Please keep posting whenever you can. Sending you a big Hug!

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