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Diagnosis - A long time coming

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    Diagnosis - A long time coming

    In 2005 I was told that the MRI results looked like a MS brain.
    That I probably did not have MS. Since that time, I have been to too many M.D.'s, and too many diagnosis (including a 4 year diagnosis of PD). As of August 10, 2012 I now suddenly have a definitive diagnosis of MS (although the brain MRI is the same as it has been several times). This is just my way of starting on this site. I am exhausted, and have a follow-up w/MS Neurologist next Thursday, 11/01.
    I would appreciate input for questions to present to her. I am not sure where to post that request (of course I would provide more details of 'my story- diagnose & symptoms)?

    #2
    hello and welcome

    hello and welcome to the forums!

    i am what ppl on this site call a "limbo lander" and oh boy it is such a good word for it. unfortunately i am in a similar position and i'm also overwhelmed by a million things and am new to this experience, so i have similar questions of other as you.

    but people on this site are very helpful and there are members who have been dx years ago who can help you too. so hopefully this bumps thread and draws their attention. also maybe look up other threads for inspiration.

    good luck with your dx and treatment you're not alone, we all know the feeling...oh gawd there's lots of them amirite? take care
    ---------
    Wishing everyone luck and as many good days as possible.

    Comment


      #3
      Welcome to MSWord, sweetpea! We are glad you found us. Have you checked out the Limbo Landers and Newly Diagnosed forum yet? Newly Diagnosed people will have a lot in common with your situation and all are very helpful and friendly! Or course, please feel free to explore all of MSW and don't be shy about asking any questions you may have.

      Take care
      1st sx '89 Dx '99 w/RRMS - SP since 2010
      Administrator Message Boards/Moderator

      Comment


        #4
        WELCOME TO MS WORLD!!!!!!! it is great to have you here, but I am sorry why. As far as what questions to ask your neurologist, I would just say to keep a list of the questions you think of. Also, take a list of all your symptoms and ask what can be done to alleviate them.

        Members here are warm, caring, and supportive. I urge you to take a look around and make yourself comfortable with all the different forums. And as already mentioned, if you have a question, please ask. Good luck to you.
        hunterd/HuntOP/Dave
        volunteer
        MS World
        hunterd@msworld.org
        PPMS DX 2001

        "ADAPT AND OVERCOME" - MY COUSIN

        Comment


          #5
          Hi and welcome sweetpea! You should have your neuro explain the different disease modifying drugs unless you are taking a more holistic approach. There are so many new ones out lately so choice is no longer limited to shots.

          Depending on how it has affected you physically, you may want to ask if physio therapy could help. I would start a list and take it with you to your appt.

          I hope it goes well, please keep us updated.
          Jen
          RRMS 2005, Copaxone since 2007
          "I hope to be the person my dog thinks I am."

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