Hello all --
I am 38 years old, male, and dealing with some very confusing health conditions. I am currently awaiting my first Brain MRI, Spine CT, and EMG. Kind of bracing myself for the bad news based on whats happening. Figured I would set up shop here and get acquainted.
I had clinical mononucleosis about 12 years ago for a solid 6 weeks. My understanding is that this increases your chances of developing MS by nearly 20-fold. In addition to this, and just prior to my current symptoms, I had the Hepatitis B vaccine. Which is also heavily tied to MS. So I am pretty much toast....
I began getting bouts of sudden weakness several months back, that flushed over me like hot water, making my thighs, legs, and body immediately weak. This would only happen when I wasn't getting good rest for several days but it was sudden and harsh. It would last until I got a good nights sleep and recur again several weeks later. Always such a strange feeling of goosebumps and waves of weakness all over me. Especially when I was out in very hot temperatures (i was in Arizona mid-summer). Would have to go inside just to cool down.
Around Sept 1 I found a swollen gland in my groin and soon after came down with a flu-like syndrome that lasted only a handful of days. The doctor put me on Augmentin 875 and that seemed to help, but eventually made me feel terrible. So I quit early.
3 weeks later my fingers and arm started twitching. I developed muscle spasms all over my body in random locations. Popcorn pop feelings in my legs, arms, scalp, and finger twitching that wouldn't go away. Within a week of this, my left foot started getting bouts of numbness, followed by pins and needles, and then a flushed, cool feeling afterwards.
The muscle spasms were the most noticeable factor, but other things arose. Fingers were extremely sensitive to cold. Holding a refrigrated bottled water felt like holding an ice cube. Fingers bright red and frozen. Feet would feel like they were burning when I got in the shower, even though the rest of my body felt only "warm" water.
After a solid 2 weeks of muscle spasms and twitching, they have subsided noticeably. But the problems in my left calf and food have gotten worse. I am finding it difficult to walk around with shoes on. Foot feels swollen and hot. Very uncomfortable. As if there's too much blood pooled in my foot. If often burns and aches pretty badly. Elevating my foot seems to alleviate this, but I can't lay down all day. I need to live life.
Last night my calf muscle began vibrating and tightening up quite a bit. I was consciously avoiding a cramp that was on the verge of happening all night long, as it continued to Tighten and stiffen up and spasm.
Symptoms seem less during the day and worse at night. I am on all the supplements (vitamin D, b12, complex, magnesium, coq10, ALA etc etc etc).
Blood tests for deficiencies are all normal. I have very elevated Epstein Barr Titers (Greater than "8") still, nearly 12 years later, and am considering Acyclovir to see if that helps.
Im really at a loss as to what is going on. I was perfectly healthy before my last Hep B vaccine shot and everything has gone down hill since. I am single, alone, and lay in bed all night with nobody to talk to or turn to. I am not mentally or physically equipped to deal with disability taking over my body at such a young age. Yes I consider 38 young still. Maybe because I have no family and no children yet.
Super lonely. Super depressed. And super sad.
Tuesday is my Brain MRI and Spine CT scan. I have an EMG scheduled for Thursday. I guess this week is when I find out the bad news. Honestly not sure how im going to be able to handle it alone.
I am 38 years old, male, and dealing with some very confusing health conditions. I am currently awaiting my first Brain MRI, Spine CT, and EMG. Kind of bracing myself for the bad news based on whats happening. Figured I would set up shop here and get acquainted.
I had clinical mononucleosis about 12 years ago for a solid 6 weeks. My understanding is that this increases your chances of developing MS by nearly 20-fold. In addition to this, and just prior to my current symptoms, I had the Hepatitis B vaccine. Which is also heavily tied to MS. So I am pretty much toast....
I began getting bouts of sudden weakness several months back, that flushed over me like hot water, making my thighs, legs, and body immediately weak. This would only happen when I wasn't getting good rest for several days but it was sudden and harsh. It would last until I got a good nights sleep and recur again several weeks later. Always such a strange feeling of goosebumps and waves of weakness all over me. Especially when I was out in very hot temperatures (i was in Arizona mid-summer). Would have to go inside just to cool down.
Around Sept 1 I found a swollen gland in my groin and soon after came down with a flu-like syndrome that lasted only a handful of days. The doctor put me on Augmentin 875 and that seemed to help, but eventually made me feel terrible. So I quit early.
3 weeks later my fingers and arm started twitching. I developed muscle spasms all over my body in random locations. Popcorn pop feelings in my legs, arms, scalp, and finger twitching that wouldn't go away. Within a week of this, my left foot started getting bouts of numbness, followed by pins and needles, and then a flushed, cool feeling afterwards.
The muscle spasms were the most noticeable factor, but other things arose. Fingers were extremely sensitive to cold. Holding a refrigrated bottled water felt like holding an ice cube. Fingers bright red and frozen. Feet would feel like they were burning when I got in the shower, even though the rest of my body felt only "warm" water.
After a solid 2 weeks of muscle spasms and twitching, they have subsided noticeably. But the problems in my left calf and food have gotten worse. I am finding it difficult to walk around with shoes on. Foot feels swollen and hot. Very uncomfortable. As if there's too much blood pooled in my foot. If often burns and aches pretty badly. Elevating my foot seems to alleviate this, but I can't lay down all day. I need to live life.
Last night my calf muscle began vibrating and tightening up quite a bit. I was consciously avoiding a cramp that was on the verge of happening all night long, as it continued to Tighten and stiffen up and spasm.
Symptoms seem less during the day and worse at night. I am on all the supplements (vitamin D, b12, complex, magnesium, coq10, ALA etc etc etc).
Blood tests for deficiencies are all normal. I have very elevated Epstein Barr Titers (Greater than "8") still, nearly 12 years later, and am considering Acyclovir to see if that helps.
Im really at a loss as to what is going on. I was perfectly healthy before my last Hep B vaccine shot and everything has gone down hill since. I am single, alone, and lay in bed all night with nobody to talk to or turn to. I am not mentally or physically equipped to deal with disability taking over my body at such a young age. Yes I consider 38 young still. Maybe because I have no family and no children yet.
Super lonely. Super depressed. And super sad.
Tuesday is my Brain MRI and Spine CT scan. I have an EMG scheduled for Thursday. I guess this week is when I find out the bad news. Honestly not sure how im going to be able to handle it alone.
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