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    Spouse of someone newly diagnosed

    Hello! I am the spouse of someone who has recently been diagnosed with MS, as well as a mom to three wonderful young men.

    My DH and I are attempting to learn all we can about his diagnosis. At this point, we know some of what MS is, but not how it will effect him, our lives together as it is now, nor how it will effect our lives in the future. We have done tons of reading and are taking an introductory class at the local hospital on MS. We have started to assemble our team of doctors - fortunately for now, it appears that we will need our PCP and a neurologist. I think we both are looking for support groups that will help us deal with his issues, my issues and our issues - if that makes sense!

    For now, we are trying to find our "new normal" and go forward.

    Looking very much forward to being a part of the community!

    Kepi

    #2
    Hi kepi and welcome to our corner of the internet! I am truly sorry you are here now, but at least you've come to a site with many great people that are willing to share info and caring. It is so darn terrifying to be dx with MS and the first year is the worst of all. In some ways I'm sure your DH is relieved to know it's not JUST in his head, it's simply ALL in his head! (kidding by the way)

    It does tend to be so hard to wrap your minds around the fact that all of the things you (or he) are experiencing can be caused by mis-firing brain or spine signals.

    Anyhow, you have come to a good place to learn and read of others experience's with their MS journey.

    Comment


      #3
      Hi Kepi, it was nice to meet you yesterday, despite the circumstances. Your insight was very helpful and I learned through referral of my doctor I can get full insurance coverage at out of network providers. Thank you so much for that.

      I wish you and your family the absolute best during this very tumultuous time and in the future. I hope you are all able to settle into a routine that will keep life somewhat normal. The new normal.

      Best to you, your family and you husband!

      s-a-n

      Comment


        #4
        " Hello! I am the spouse of someone who has recently been diagnosed with MS, as well as a mom to three wonderful young men. "


        WELCOME!!! NICE TO MEET U!


        " My DH and I are attempting to learn all we can about his diagnosis. At this point, we know some of what MS is, but not how it will effect him, our lives together as it is now, nor how it will effect our lives in the future."

        I wish I could tell you what the future holds but everyone is different. As they say, there are two sides to every coin.

        " We have done tons of reading and are taking an introductory class at the local hospital on MS. We have started to assemble our team of doctors - fortunately for now, it appears that we will need our PCP and a neurologist. I think we both are looking for support groups that will help us deal with his issues, my issues and our issues - if that makes sense!"

        Congratulations on the research, knowledge is power! You have taken a great first step! Support is huge, the more the better for both of you.

        " For now, we are trying to find our "new normal" and go forward.

        Looking very much forward to being a part of the community! "

        You have a great attitude! Always look forward, the only thing behind you is history. GOOD LUCK.
        hunterd/HuntOP/Dave
        volunteer
        MS World
        hunterd@msworld.org
        PPMS DX 2001

        "ADAPT AND OVERCOME" - MY COUSIN

        Comment


          #5
          Keep it up

          Keep up the positive thinking and attitude. It becomes a huge part of it as all of the processes sink in. When I was diagnosed I could only relate it to feeling like someone had died and I was mourning in them. I went through all stages of grief. So did my husband.

          Now we take one day at a time. Having good days and bad and working around what each different day brings.

          Good luck with finding the new normal, we did and we have such a better relationship than we ever have had.
          LIVE LOVE LAUGH

          Comment


            #6
            Thanks for the welcome!

            Thanks so much for the warm welcome!

            It was great to meet you Struck-a-nerve, as well as your DH. Keep your chin up! You're already getting a great support system in place.

            DH is getting ready to start on Capaxone. Just waiting for the final push from the insurance company to get it going. I work in the medical field and deal with insurance on a daily basis, but even so its frustrating to have to wait!

            Comment


              #7
              great Job!!!!

              Nothing will help the situation more than having a very supportive wife at his side. just let him find out his limits and how much he can do and enjoy before the fatigue sets in. with you by his side and with all the knowledge you would gather you all can def have fun and enjoy your normal. this worked for me, and i am so grateful for the families the Lord bless us with.

              Comment


                #8
                Hi Kepi, bless you for reaching out for your hubby, you are both very lucky to have each other. I'm a fan of Copaxone, it has worked well for the past 5 years. Keep us updated and nice to meet you.
                Jen
                RRMS 2005, Copaxone since 2007
                "I hope to be the person my dog thinks I am."

                Comment


                  #9
                  Welcome, Kepi! As a newly diagnosed MS'er myself (April), I can tell you that there are wonderful people here that can give you tons of information. All you have to do is ask, and trust me, you will get answers!

                  It is great you are so willing to be an advocate for your husband, as well as a rock when he needs one. Just remember to take care of yourself, too!

                  Mostly, (and this is just me), and other than financially, my DH and I just try to go day by day because of the unknowns that MS can throw at you. We are learning (sometimes the hard way) that "yesterday is gone and tomorrow is not yet here". It is hard to learn to live like that when you are a planner like I am, but it is working little by little. The financial aspects, now and in the future, are a biggie to look at, just know there are some great places to go if you need financial help with copays or equipment or almost anything! If you need to learn about those, just ask. I would give you links, but I don't have them with me at this time.

                  Good luck to you and your family! You are your own best advocate!

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