Hi I've been on Rebif for years and recently was taken Off of it because I have very low white blood cell count.
I am ordered to take three weeks off and then do another blood test.
I have been off of it now for two weeks tommorow.
All I have to say is I FEEL GREAT!!!
I have so much more energy, I've had numbness in my arms, hands and torso for years which is very much better.
I feel generally great!! I guess with my body filtering the medication through my liver it's taking it's toll.
Well I think it has made me decide to go off Rebif. I was on Copaxone years ago but my neurologist wasn't happy with attacks I'd been having.
I do not want to have attacks of course but I don't want Rebif to take my life away. I have a heart condition since birth which I've always been told to watch for infections as it can dangerously attack weaknesses in the heart.
Low white blood cells = danger of infection increases.
I am looking to either switch to Copaxone again OR take one of the new oral drug therapies or there is the new hormone therapy Estriol?
I'd love to hear others imput and experiences with any of these topics, I have a very important decision to make and soon. I don't want to do the wrong thing.
Thank You
I am ordered to take three weeks off and then do another blood test.
I have been off of it now for two weeks tommorow.
All I have to say is I FEEL GREAT!!!
I have so much more energy, I've had numbness in my arms, hands and torso for years which is very much better.
I feel generally great!! I guess with my body filtering the medication through my liver it's taking it's toll.
Well I think it has made me decide to go off Rebif. I was on Copaxone years ago but my neurologist wasn't happy with attacks I'd been having.
I do not want to have attacks of course but I don't want Rebif to take my life away. I have a heart condition since birth which I've always been told to watch for infections as it can dangerously attack weaknesses in the heart.
Low white blood cells = danger of infection increases.
I am looking to either switch to Copaxone again OR take one of the new oral drug therapies or there is the new hormone therapy Estriol?
I'd love to hear others imput and experiences with any of these topics, I have a very important decision to make and soon. I don't want to do the wrong thing.
Thank You
Comment